It's ok we all need to talk. I get up everyday when my hubby goes to work. I don't think I suffer as much as others do. I start day with long hot bath and finish with another hot bath. Baths really help me

Yeah, I can stay in bed for about 10 hrs or so unless my pain keeps me from being comfortable enough to stay in bed. I don't usually get enough sleep when I have to work during the week. I don't have kids but my job I do is hard enough. It's physically and mentally exhausting and I'm always feeling worn out and no energy to do anything else. I don't know how you can do it really! I hope someday the light turns on for your husband to understand.

Sorry to hear your story hunni, looks like your not getting the time to recuperate what soever and that is not right. There should be more understanding on how this disease actually affects your every day function. The fact I have 4 young children if my own I understand how hectic life is but you really need to get your husband to help out more with the children. As for the child who lives with her mother she needs to start doing more it sounds like their taking advantage of your caring nature. I know its none of my business but you need rest hun, time to rest. If they don't understand how bad things are get to s computer and print out exactly what the symptoms are how they effect your every day to day life and get them to read it. In the meantime I am hear anytime if you need someone to ramble on to God knows even talking helps..sending gentle hugs pet I hope they start to understand and help you out more God bless xx

I find it uncomfortable , in bed for a long time hurts. Hot baths help, really helped today.

My husband goes to work very early too and is in bed by 8-8:30 every night. I can't lay down that early so I sit in living room in my recliner until about midnight. So nights I have a lot of energy so I will clean kitchen or do some laundry. Thank you all for your encouragement. I really need it...