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A MyFibroTeam Member asked a question 💭
Tomah, WI

I have both fibromyalgia and Meniere's disease. There is substantial overlap between the two, in both triggers and symptoms. Overexertion, salt intake, other environmental toxins, stress, etc and etc. Dizziness, nausea, anxiety, gut pain, tinnitus, etc and etc.

What research has been done with this overlap?

My hearing loss on my most recent audiogram available ranged from 70 db at 3000 to 8000, to 35 db at 250. Do many others have fibro with progressive hearing loss? Or suspect… read more

February 12, 2016
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Answer Summary

Members connected over the overlapping symptoms of fibromyalgia and Meniere's disease, sharing experiences with hearing loss, vertigo,... Read more

Members connected over the overlapping symptoms of fibromyalgia and Meniere's disease, sharing experiences with hearing loss, vertigo, tinnitus, and balance problems, with several describing significant hearing deterioration over recent years and one member mentioning brain surgery to address balance issues. Several members discussed practical management strategies including meclizine for vertigo, physical therapy exercises for balance, learning ASL, and working with younger doctors more educated about overlapping conditions. A recurring theme was the complexity of managing multiple conditions simultaneously, the challenge of medications that worsen one condition while treating another, and the importance of advocating for proper testing and diagnosis even when symptoms seem interconnected or difficult to separate.

A MyFibroTeam Member

Might be worthwhile. If there is a connection for a subset of fibro patients, then it would do well for more to watch for the possibility. More people wear HA's today, because they can be tuned to the individual's audiogram. Not just amplifiers any more.

February 16, 2016
A MyFibroTeam Member

No reports of permanent hearing loss in Fibro patients, in fact, there's a significant sub population of Fibro patients with painfully sensitive hearing. All of which suggests there's probably not an overlapp between the two, but they can definitely be exacerbated by the same things.

February 12, 2016
A MyFibroTeam Member

I am so sorry that you have to deal with both Meniere's and fibro-so many of us have two or more problems to live through-I do not know much about Meniere's-I do get stones in my Silva ducts and it hurts like hell-for years it was considered all in my head then went to one doc and he diagnosed it right off-have to remember to drink lots of water to keep it at bay.

February 12, 2016
A MyFibroTeam Member

gosh Mary, now you say - I have had deteriorating hearing over the past three years at least.

February 12, 2016
A MyFibroTeam Member

I haven't seen anything in the research data comparing Meniere's and Fibro, that being ssid, Fibro does tend to co-occur with a number symptoms that vary highly patient to patient.

Since Meniere's is, like Fibro, mainly a disorder that depends solely on patient self-reports, it's entirely possible they're different presentations of the same underlying disorder. It's also possible that they're two separate etiologies that aren't related.

After all, we know Fibro can effect our other senses, so why not our sense of balance?

February 12, 2016

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