I have found myself trying to find excuses to not go out and socialize, I used to love to go out with my friends and as I'm single it helped to with the lonliness, I feel that this illness is slowley taking away my ability to enjoy life.
Go socialize, you need it, but know your limits and don't get wrangled into anything that will cause a flare or undue suffering. This means sometimes not being a good sport and doing favors.
All the time coz I haven't the energy to get dressed and do hair and makeup etc. 9 times out of 10 my arms are too weak to do anything, by the time I ve sorted the kids and the house I m beat.. Horrible excuse I no some people take it personally thinking you don't want to have them over or you can't be bothered going out with them. I ve lost quite a few friends due to this but all honestly I would love the energy to go out and socialise..
Go out with friends is the best thing for you, if there good friends they will understand you may only be able to stay out for a short time, but at least your doing something , don't sit at home alone not good for you xx
Yes I feel same it takes so much effort I don't feel myself and unless it's just coffee with a friend . I am an active member of my church but can't bring myself to worship on Sunday or go to my prayer group on a Monday . So you are not alone
Same and I'm single chic hard we know I do push myself wen I'm able tho I found it helps to keep understanding ppl in our lives if poss. Xx