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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Abilene, TX

I have restless leg syndrome. But for the past month or so my whole body has been, I guess what I could call it, twitching. Every night while trying to go to sleep my whole body jerks. It's like having a seizure for a second. I do have mini seizures in my hands but I don't understand why my whole body is doing this. It will sometimes just be one body part but mostly whole body. My Dr wants to to get magnesium. Any advice or ideas what to do?

January 28, 2016
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Answer Summary

Members rallied around someone experiencing severe whole-body jerking and twitching at night, sharing that magnesium supplementation... Read more

Members rallied around someone experiencing severe whole-body jerking and twitching at night, sharing that magnesium supplementation (especially paired with vitamin B6) was widely praised as helpful, though some cautioned about dosage to avoid digestive issues. Several members identified medication side effects as a potential culprit, particularly gabapentin and Lyrica, while others suggested checking ferritin levels (iron stores) or vitamin D deficiency, and many shared their own prescriptions for restless leg syndrome including Mirapex, Topamax, and muscle relaxers. A recurring theme was the trial-and-error nature of finding relief, the importance of advocating for proper testing beyond standard bloodwork, and the shared frustration of symptoms that disrupt sleep and quality of life.

A MyFibroTeam Member

I take high doses of calcium magnesium and zinc every night before bed. It works, but is not a cure. I sometimes need to take a muscle relaxer. It had the added bonus of building my bones and teeth. I think it works well, I no longer have that annoying feeling of twitches.

January 29, 2016
A MyFibroTeam Member

I think some medications can cause it also.

March 11, 2016
A MyFibroTeam Member

Are you on lyrica or gabapentin? These will cause those type of jerks if the dosage isn't right. I call them my own religious revival because sometimes my arms literally just fly up in the air as if I'm possessed by the Holy Ghost. ☺️

October 4, 2016
A MyFibroTeam Member

Yes medications can for sure. I know the jerking is a side effect of gabapentin, which I was on for three years. I started twitching at night while lying in bed to sleep, then it became more and more prevalent. Hope this helps!

March 18, 2016
A MyFibroTeam Member

@A MyFibroTeam Member.ABSOLUTELY take magnesium for those weird body Jerks of fibro it can work miracles!!!!! Epsom salts is magnesium sulfate. Don't take too much or you'll get diarrhea, which will deplete the magnesium and the jerking will happen again. Add vit b6, mag and b6 work together!!!! I use life extention brand magnesium caps 500 MG and Vitamin b6 250 MG I have them by my bed and take them as needed!!!! They are inexpensive and I couldn't live without them!!! Hope this helps.

February 12, 2016

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