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A MyFibroTeam Member asked a question 💭
Dauphin, MB
January 27, 2016
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Answer Summary

Members overwhelmingly agreed that fibromyalgia is diagnosed through a process of elimination, with doctors ruling out other conditions... Read more

Members overwhelmingly agreed that fibromyalgia is diagnosed through a process of elimination, with doctors ruling out other conditions through blood tests, MRIs, nerve studies, and other screenings before confirming fibro, typically using the 18 tender point test (though newer criteria exist). Several members shared their diagnostic journeys, emphasizing the importance of finding a knowledgeable rheumatologist who takes fibromyalgia seriously, with some recommending teaching hospitals where doctors actively research the condition, while others warned against physicians who dismiss it as being all in your head. A recurring theme was frustration with the lengthy and often invalidating diagnostic process, coupled with relief and validation when finally receiving an official diagnosis from a compassionate provider who understood their pain was real.

A MyFibroTeam Member

It seems very confusing to hear or read contradictory answers to the question about diagnosing FMS. My daughter, then my sister, who were both familiar with it asked if I had considered checking to see if I had it. I did some reading. YES--symptoms concurred; YES--migraines, insominia, mood swings, fatigue. . .and on and on. Just before I was convinced I had it, I was scheduled for back surgery. As part of hte pre-op exam I was asked if I had fibromyalgia. I answered that I was pretty sure I did, but not certain. The doctor poked me in a few place--'does that hurt?", then "does that hurt", then again and again, but he was no where near where I hurt. "you don't have fibro" he told me. Well, now several years, and appts, and drugs and trreatments and professionals and articles later, I without a doubt have fibromyalgia. Don't take the word of one, or two, even three med professionals if you feel that all the symptoms are present. We must believed as surely as if we were run over by a steam roller and left flat like in an old cartoon. We will not miraculously bounce back up and be our old selves. There are reputable people with whom you can work. Keep a journal of now and recount some of the stories of before you felt this way. It is impossible to recall everything, especially when you are in the exam room, a captive audience, on the spot and somewhat intimadated by someone who has framed sheepskins covering the walls. By the same token, don't be closed minded and rule out other possible serious conditions which may bear similarities to FMS. The process can be long and grueling and frustrating. But not knowing is worse than knowing--whatever you are dealing with. Wishes and hugs to all!--J

February 4, 2016
A MyFibroTeam Member

It depends what kind of tests you are hoping they take that can prove you have Fibro. If your expecting a blood test, a xray, a mri, a brain scan to show you have fibromyalgia. Sorry. You won't find the answers their. Remember. This is effected by our nerves. We have no inflamation, decreasing bones, or muscle tears from fibro. I mean we do, but not from fibro. From something else wrong with us added to the fibro. Younwill be given all sorts of different testings . Not to show you have it but to rule out all other things it could be. So try not to get to frustrated. Then you will take the 18 point test. Dont get discouraged if none of those points arent tender to touch. The first time he tested me i only had three. Now i probably have all. Lol. Hope this helps

February 5, 2016
A MyFibroTeam Member

My mom and I have both have fibro and we were told the same thing. They can do tests to rule out everything else and check your mobility and ask questions about symptoms but that's about it. My doctor didn't want me to have to pay a bunch of money and waste time on test to rule out other stuff because my mom has it to.

January 27, 2016
A MyFibroTeam Member

@A MyFibroTeam Member
Your Dr is correct. Body trauma can cause it. That is what happened with me. A vehicle accident. And there have been so many days I have hurt to the point of wondering WHY the vehicle didn't flip when the defective tire blew?

February 1, 2016
A MyFibroTeam Member

You need to find doctors who believe in fibromyalgia or you will never get help. Been down that path. Once you find a good one they can direct you to others.

January 30, 2016

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