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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Bartlett, IL

When making the transitions within your life, those who have been diagnosed within a young age, have you ever felt that work is just not an option?

January 18, 2016
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Answer Summary

Members shared deeply personal stories about the impossibility of maintaining traditional work with fibromyalgia, with many forced to leave... Read more

Members shared deeply personal stories about the impossibility of maintaining traditional work with fibromyalgia, with many forced to leave their careers in their 20s and 30s due to unpredictable flares, unrelenting pain, and debilitating fatigue that made even basic tasks like showering or driving insurmountable. Several members described applying for disability benefits after years of struggling to push through, with one member noting their full-time job became taking care of themselves, while others found creative solutions like substitute teaching to maintain some flexibility. A recurring theme was the profound grief of losing careers they loved, the social stigma of being unable to work, and the gratitude for understanding employers or disability support that allowed them to prioritize their health without guilt.

A MyFibroTeam Member

I am a nurse, I was able to keep my job for about 15 years, missing a lot of time, eventually that's why I stopped. but I haven't been able to work for almost 8 years

January 21, 2016
A MyFibroTeam Member

I have a job and an amazing boss who is very understanding... I have missed more work then I have been at work! Last week i only managed to work 2 hours! And that is at a job with a boss that will let me work laying on the couch or floor if need be...but if I can't even get out of bed and showered let alone make the drive there, it's just not going to happen!

January 19, 2016
A MyFibroTeam Member

I had to stop working due to a back injury from work; sued ad won. The fibro started 2 yrs after and still unable to work. My neurologists told me to find a hobby as working is not in my cards anymore... hard to swallow as I'm now 46

January 19, 2016
A MyFibroTeam Member

I wasn't able to work all my straight away I was a youth worker and unfortunately G2 that unremitting pain and spasms I have not been at work 12 years I've now just become a father which is great as at first before we won't be able to have children due to medication but we had a bit of a one off miracle work was very important to me it was so frustrating having a medical qualification and a diploma in social work 10 years experience and not being able to work I got disability in the UK but the social stigma and the frustration I've not been able to work has taken its toll what are the big changes for me what's been put on baclofen and duloxetine but also exploring mindfulness and it's approach to chronic pain

January 19, 2016
A MyFibroTeam Member

There is no way i could work either, I feel really bad most of the time. I have applied for my disability which i was denied twice but my attorney is taking it before the judge. I would like to work but with my pain it is almost impossible.

January 19, 2016

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