No' I have to be honest I really have got a very caring doctor and that makes the world of difference. although it was the Rheumatologist that told me I had Dercums disease, Fibro, AS, Rheumatoid & osteoarthritis and coccyxadimia, my doctor still tried me on every pain releif she could' plus sent me to different specialist whilst waiting to see the Chronic pain specialists who are amazing. They sorted all my pain medication and also put me on Morphine' plus I went on a pain management course but you can only do that through them. I also suffer with severe depression' but it does only take one good doctor who I know are very hard to find' because if they could they would brush Fibro under the carpet. Reading some of your storys I have been one of the lucky ones, because its about time they realised how much of a debilitating disease Fibro is' not just for us but our families as well.
My heart goes out to you all' sending big hugs xx

I have not but have wished so, so many times that I had. Both me, and my mother especially have been treated poorly by dozens of nurses, doctors, etc in the NHS.

However, one day I had had enough of not getting any help for further tests with my previous doctor so I decided to ring up an advocate to come along with me so they would understand the point I was trying to get across. The doctor then finally sent a referral to a neurologist to do an EMT.

So if you need to, I would certainly try an advocate. Good luck.

Neuro phoned me yesterday to say i have a benign brain tumour

I had to email nhs complaints department today they dealt with it well

over 30 years ago my doctor refused to see one year old son evan though i waited hours at the surgerey (he was being sick and diarea and crying ) i took him to the hospital wear they kept him in for a few days and they reported the doctor . i was told by him that my familey was off his list and it took quite a while to find another doctor to take us and that one was miles away .at that time we didnt drive eather ,not a nice expereance