Does Your So Do Reaserch? | MyFibroTeam

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Does Your So Do Reaserch?
A MyFibroTeam Member asked a question 💭

My so will not do any reaserch on FM he thinks I'm faking most of the time and has also told me if it effects me that much why have children which I already have... Are any of you so not so understanding or are they willing to be as informed as possible?

posted December 26, 2015
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A MyFibroTeam Member

I understand what you are going through and my husband gets annoyed when I can't roll as fast as he does in life. He is always trying to fix it and take it off his task list. I finally just told him that it's not going to be "fixed" but something that I/we will have to manage the rest of my life. This sight has been the best thing I've run into as far as providing validation and support from people who understand. Hang in there and try to get him to go to your doctor appts.

posted December 27, 2015
A MyFibroTeam Member

My other half comes to my appointments with me, looks up symptoms and really takes it all on board. My other half knows how badly my health affects me, he is very caring and compassionate. He takes his days off work just to be with me for hospital and doctors appointments, he also asks questions when we are there which is great as I forget everything.

I would suggest asking your partner to go to one of your main appointments and then see for himself that you are not lying, lazy or faking. If he is not willing to go or take anything on board about your health then I am sorry to say he maybe isn't worth keeping around. Him having a negative attitude about it doesn't help you in anyway, it can really affect your mental health too. Hope I haven't hurt your feelings or offended you in anyway. Hope that has helped a wee bit x

posted December 27, 2015
A MyFibroTeam Member

I'm with you. My husband if 18 years still thinks it's only "stress and anxiety " and that I'm not "trying hard enough." This is patently ridiculous in light of my very severe symptoms and diagnoses, and my personality. So my therapist and I are in agreement that he's simply in denial. It didn't help that my first couple of doctors didn't know what to make of it and told me it was in my head. They did a world of hurt.

Taking him to my docs now just enrages him. He doesn't even think I should be seeing a neurologist, which I have to do every month. So I don't know what to tell you. I've tried to educate him and nothing has worked. Try all the common sense stuff, and if he still doesn't believe you, put that back on him. He is in denial. And there may be nothing you can do about it. Sorry to sound harsh, but I just had another one if these discussions with him and after 4 years he still doesn't get it. I see little future there. Sigh.

posted December 27, 2015
A MyFibroTeam Member

People see our illness as not real because we look normal but if they knew the pain they would understand. Be strong stand up for yourself! Pain causes depression which makes it worse. Find only positive things but on your bad days rest and find how to center yourself and it will get better! I promise.
I’m sorry you don’t have the support but you’re not alone. We all understand the struggle. You have to find acceptance for yourself and let everything else fall into place. Focus on where you want to be. Keep your mind strong and busy. Or just rest! They will have to support at sometime but if they don’t believe you, ignore it. You know your body! Find your peace

posted December 5, 2017
A MyFibroTeam Member

my mom admitted she thought I was either exaggerating or fabricating my symptoms. it wasn't until after i'd seen a neurologist that she began weaving the fibro concept into her way of thinking.
as an aside ... the neurologist appointment that i'm speaking of was actually for the chronic migraine syndrome (not sure if proper name?). before a word was spoken about those, she said, "you do realize you have fibromyalgia, right?"

posted December 28, 2015

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