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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Louisville, KY

Does anyone else have temperature extremes? Sometimes I am so cold that my husband feels the need to hold me shoulder or leg or what ever til I have done heat other times I am just broiling. It is not menopause.

December 21, 2015
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Answer Summary

Members strongly related to the original question about extreme temperature fluctuations, confirming it as a very common fibromyalgia symptom... Read more

Members strongly related to the original question about extreme temperature fluctuations, confirming it as a very common fibromyalgia symptom that leaves many feeling rarely comfortable and constantly adjusting blankets, fans, or clothing throughout the day and night. Several members described specific patterns, including ice-cold feet paired with an overheated body, sudden sweating while sitting still, severe sensitivity to weather changes, and rapid swings from freezing to boiling within seconds that can feel frightening when extreme. A recurring theme was the frustration of having a broken internal thermostat that others don't always understand, the challenge of finding relief through layering or fans, and the shared hope for solutions to this unpredictable and exhausting symptom.

A MyFibroTeam Member

I have really bad temperature fluctuations. One minute I'm freezing, the next I'm boiling. Its really horrid. I hate being and unfortunately I spend the majority of my time way too hot!
I don't know if there's anything that can be done, I haven't discussed this with my GP. Hope you find a resolution soon.

December 23, 2015
A MyFibroTeam Member

I am usually too hot! I can be sitting still at work and suddenly feel extremely overheated and break into a sweat. On rare occassions this happens but with cold. My feet are almost always ice cold, though. Soft socks and leather boots seem to keep them warmest.

December 21, 2015
A MyFibroTeam Member

Absolutely! I am rarely comfortable. Hot and cold all the time. I wake up all night long putting the covers on, and throwing them back off again. My husband used to joke, saying my "thermostat was broken"!

December 21, 2015
A MyFibroTeam Member

My feet are like ice all the time. I hate wearing socks though, because any pressure at all around the inside area of my ankles causes extreme pain. The rest of me feels hot all the time. I haven't used anything more than a light sheet to cover my feet in bed for years, but àlso need the ceiling fan on at all times.
Does this màke sense to you?

December 21, 2015
A MyFibroTeam Member

Not being able to sustain a comfortable body temp is a very common fibro symptom. I go from dripping sweat to freezing within a matter of seconds. In do this all night and sometimes all day. It makes everything worse and makes me feel like I'm dying when it gets extreme

December 21, 2015

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