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A MyFibroTeam Member asked a question 💭
Winston Salem, NC

I always have trouble when doctors ask me to rate or describe my pain. What do you guys say? Thanks

December 17, 2015
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Answer Summary

Members shared creative ways to describe fibromyalgia pain to doctors, including comparing it to childbirth or kidney stones and using phrases... Read more

Members shared creative ways to describe fibromyalgia pain to doctors, including comparing it to childbirth or kidney stones and using phrases like 'all over my body' or 'what isn't hurting?' Several members strongly recommended keeping a daily pain journal or chart that tracks pain levels, locations, weather, stress, and medications, noting this documentation helped them be taken seriously by doctors and proved invaluable for diagnosis or disability applications. A recurring theme was the frustration with standard pain scales that don't capture fibromyalgia's complexity, with members emphasizing the importance of self-advocacy, bringing visual tools like color-coded body diagrams to appointments, and finding doctors who truly listen and understand the condition.

A MyFibroTeam Member

I agree the typical pain scale doesn't fit for fibro.

December 18, 2015
A MyFibroTeam Member

There is an android app called fibromap...if u are up to keeping track that way

December 17, 2015
A MyFibroTeam Member

When they ask me to describe the pain aching, burning, etc etc. I tell them in the last 24 hrs. "all the above". They give me that look, one of the doctors at the VA said to me "I have a very rigid criteria for diagnosing Fibro" my response went something like this, I do not care what your criteria is being that is rigid and all and care even less what you want to call it, I had bought along a sheet with an outline of the human body front and rear. I had taken color pencils and shaded in areas that I was experiencing pain and color coded level of pain, I believe at that time my pain ranged between 6-10. I told him I was in trouble physically and mentally and if he wasn't going to help me I would find someone that would. He sent me to a rheumatologist and I was diagnosed. The pain scale is all we have, if its an 11 tell them, and show them your log. We have got to be our own advocate. If they blow you off, tell them that's how you feel and search out someone that will listen!!!!! As babysnroses said Fibro itreatment is so much more than just pain treatment.

July 16, 2016
A MyFibroTeam Member

I say an 11 or off the charts!!..:-)

December 17, 2015
A MyFibroTeam Member

Agreed

December 17, 2015

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