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A MyFibroTeam Member asked a question 💭
Honolulu, HI

During a recent fibro flare, when I had some pretty bad muscle spasms and non-epileptic seizures, my larynx or throat clenched, and I couldn't speak for about 24 hours. Later, when my speech returned, my throat hurt, and two weeks later my voice is still weak. I went to the ER for stroke symptoms but am ok, and have talked to my neurologist about it (no answer). Anyone else had this?

December 13, 2015
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Answer Summary

Members connected over the frightening experience of losing speech during fibromyalgia flares, with several describing similar episodes that... Read more

Members connected over the frightening experience of losing speech during fibromyalgia flares, with several describing similar episodes that mimicked stroke symptoms and involved throat clenching, difficulty swallowing, and lasting voice weakness. Many members shared related speech challenges including frequent stuttering (often linked to fibro fog or word-finding difficulty), losing their train of thought mid-sentence, and struggling to get words from brain to mouth, with some attributing these issues to overlapping conditions like thyroid problems, Hashimoto's disease, or non-epileptic seizures. A recurring theme was the validation of knowing others face these scary and embarrassing symptoms, along with practical suggestions to explore vocal cord dysfunction with an ENT or allergist, get thyroid levels checked, and recognize speech difficulties as a signal that the body needs rest.

A MyFibroTeam Member

I haven't ever lost my voice completely but I totally lose my train of thought in the middle of speaking with people. I also sometimes struggle with words where I know what I want to say but can't get the word from my brain to my mouth to say what I want to say!

December 16, 2015
A MyFibroTeam Member

Leolady56 , your story sounds just like mine, I have a hard time swallowing. I'm always chocking on absolutely nothing, just swallowing my saliva I'll chock

December 27, 2015
A MyFibroTeam Member

I get really bad Fibro Fog when a Fibro Flare. I have been in a major Fibro Flare for 2 years now. I haven't ever lost my speech but I can relate to the having difficulty swallowing.

December 26, 2015
A MyFibroTeam Member

Becomes inflamed so causes me a lot of problems. Maybe you should get thyroid tested. Just a thought not trying to worry you. Hope you feel better! Angie

December 16, 2015
A MyFibroTeam Member

Sorry no but a friend did and there still trying to figure it out ! Sees another specialist in January . Will let you know if they figure anything out !

December 13, 2015

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