Hi fellow fibro warriors. Lately I've been feeling like my symptoms are worsening over the years. Pain is getting worse as is forgetfulness and anxiety. I'm afraid to drive or go anywhere by myself. Seems like I'm having less and less "good days" and sliding down fast. Not sure if this is a real thing or just my imagination.
My physical therapist gave me a book on Fibromyalgia and in it they say there is 5 stages and not everyone progresses quickly but I have had this for years undiagnosed until I could no longer ignore it. I am now on disability and have a hard time walking. The brain fog has become almost embarrassing. Yet memory testing showed nothing and they just said it was anxiety. Now I am getting more bold to advocate for myself. I kept saying,”There has to be something else other than JUST Fibromyalgia “ I hated feeling invalidated at every appointment. And most days I am too tired to fight them all and there is no pushing past this extreme fatigue. So, yes it is progressive but not in some people but they are finding that this is a real disease of the central nervous system and inflammation in the tissue of the brain. They might soon add it to a condition for Neurologists to work with instead of rheumatologists . I told them I felt like it comes from the central nervous system for years. It would explain the brain fog, exhaustion, pain sensitivity, and depression associated with it. And now they are taking away pain meds and in pain management classes I learned pain comes from the brain. So to me it’s all coming together to have a test to prove Fibromyalgia and what stage you are in based on the level of inflammation of the tissue surrounding the brain. Not surrounding but like inbetween the twisting looking spaces on the brain 🧠
@A MyFibroTeam Member
No your not abnormal I have found since having Fibromyalgia my Sex drive has decreased quite a lot, I am also always in Constant pain as well.
I only give into my husband just to keep him happy, but ultimately my Sex drive has waned and I do wonder if its because of the Fibromyalgia Pain.
Sex it is no longer pleasurable experience anymore for me.
Don't know if other women are the same?
Thought it was just something we have to live with, but it can be a problem for many relationships to keep the going under such circumstances.
@A MyFibroTeam Member
I certainly hope so we definitely need some validation from our Doctors and Specialist it would be great if they made PET scans mandatory for Fibromyalgia patients.
Yes I agree with you about Fibromyalgia being a Central Nervous System Disease based on the inflammation of the brain.
I just wished Doctors would believe that Fibromyalgia is progressive.
Please keep up your research and keep us informed. Thank You.
Thank you Marji❤️ Amitryptaline, Cymbalta,Lyrica, are all in the usual use my Neurologists. They treat depression and seizures. Because they alleviate some of Fibromyalgia pain it only proves to me that this newest research finding is true. It is a Central Nervous System disease based in that increased inflammation in the brain. I believe in no time they will perform PET scans to diagnose it and then we can have medical validation for our widespread pain,brain fog, and other brain related symptoms and Neurologists is who we will be assigned to see.
Hi sorry I have not posted for a while had a lot of emotional worries and bereavements .
Can I ask do women lose their sex drives and have problems with intimacy due to pain ?
I have been to doctor and counsellors and tried various treatments and nothing takes away the excruciating pain and then having no desire anymore due to pain becomes a vicious circle . Sorry if I am being direct just wondering I am abnormal ?
Love to everyone ❤️