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What Did You Notice First? How Long Did I Take To Get Drs To Listen?

What Did You Notice First? How Long Did I Take To Get Drs To Listen?

What was your first symptom? How did it start? How long until diagnosis?

A MyFibroTeam Member said:

I've read that fib t o starts in the gut. You need to clean up the gut with pretty and probiotics before anythinG changes. Your bowel has areas that let food leak thru into the abdominal cavity, poisoning that area and it goes into the blood stream. Cleaning is the first step. I guess a cleanse is in order, then a list of foods to eat and not to eat along wit the biotics. You can find it under Google or youtube. Diane

posted about 4 years ago
A MyFibroTeam Member said:

It is very frustrating to go to a doctor hoping they can help. I was rear ended and that caused my pain. All of the doctors I went to said the pain should go away after six months. My pain only got worse. I kept it under control by going to a chiropractor but my insurance didn't want to pay for it anymore. I spent four years trying to find out what was wrong. It mostly took that long because I thought I was losing my mind. I got diagnosed only after seeing a Rheumatologist. My sister has depression and she started seeing a good doctor that listened to her. This doctor is open to new testing too. She had a medical genetics test done that helped them to pin point what was causing her depression. I am now wondering if we fibromyalgia patients need to do this test.. Doctors will not test for it unless you ask them to. hope this helps.

posted almost 5 years ago
A MyFibroTeam Member said:

That's basically what my GP's were saying to me for over 30 year that it was all in my head, I new that there was something wrong with me as the pain was so severe but GP's were labelling me as a hypochondriac, and when in August 2014 a GP said he believed that I was suffering from fibromyalgia it was in a sense a relief to find out that the pain I had been and still suffer with had a name, but like yourself it was 30 plus years to long.

posted almost 5 years ago
A MyFibroTeam Member said:

I started having symptoms when I was 20, after a bad bout with mono. I had loads of tests done, and they all showed I was perfectly normal. Ha! Of course, this was in the late eighties when most docs knew nothing about Fibro. My doc finally hung a dx of Chronic Fatigue Syndrome on me, but he said he was doing it because I was "obviously a drama queen that needed a label". I left his office in tears and never went back. I didn't get an official dx until 2009, which was 22 years later. Twenty two long years of feeling crappy and thinking it was all in my head! I don't think it takes that long for everyone, though. I was so shocked and relieved to hear it actually had a name that I cried again. Too bad my old doc died young, otherwise I would have visited his office and nailed the dx to his forehead!

posted almost 5 years ago
A MyFibroTeam Member said:

Neat, I had similar symptoms along with irritable bowel, panic attacks and fatigue. Migraines. Today I'm totally constipated. Part of my colon is paralyzed. So I take Milk of Mag tabs 4, every night. Once a week I have to take a full-blown lax of Epsom salts. Heating pad helps the pain and gas. Get cramps in legs, feet, arms and ribs. So much fun! Lol

posted about 4 years ago
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