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A MyFibroTeam Member asked a question ๐Ÿ’ญ
Montreal, QC

If so, would you recommend other people with fibromyalgia to let their boss knows about it?

October 3, 2015
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Answer Summary

Members shared mixed experiences on disclosing fibromyalgia at work, with some finding supportive bosses who offered accommodations like... Read more

Members shared mixed experiences on disclosing fibromyalgia at work, with some finding supportive bosses who offered accommodations like working from home or reduced physical tasks, while others faced skepticism or job insecurity. Several members recommended seeking protection under the Americans with Disabilities Act (ADA) and emphasized the importance of weighing whether a boss is likely to be understanding, noting that disclosure can lead to helpful accommodations but also fears of being seen as unreliable or too costly. A recurring theme was the challenge of invisible illness, with many members describing frustration over not looking sick, being doubted by colleagues, and struggling with cognitive symptoms like memory issues that made keeping up at work even harder.

A MyFibroTeam Member

In most positions it's hard to hide. So verses them thinking it's something else or not understanding your bad days getting more and more frequent, not to mention the meds you'll be on while at work. I guess it depends on your job and your boss.
Best of luck. Gentle hugs ๐Ÿ’œ

October 3, 2015
A MyFibroTeam Member

I told my boss and even though I know she probably thinks I'm a pain in the ass but she has been so so supportive. I've been able to work at home and they have helped me a lot. Obviously it isn't a long term thing and I am hoping to get back to work as its lonely at home as well.
Some of my colleagues are not supportive but I've started to not care what they think. If you have your boss behind you then it is none of their business. If work do not help, it is discrimination so is definitely work discussing with them. If you need any advise just let me know :)

October 4, 2015
A MyFibroTeam Member

In my last job I was still in the process of trying to get a diagnoses and I didn't know what was wrong with me ,I just Knew something was very wrong. I wasn't able to hide the fact that I was I'll ,it was pretty obvious. I didn't take time off in the beginning ,I always turned up to work but I wasn't able to lift or bend properly. I also had to ask for time off to attend my medical appointments. The advantage of telling your boss ,your boss may be understanding( my personal experience is that they are not), work places often have a duty to provide equipment to employees which may help them in their working environment part of the disability act. You may be able to have the particularly physical parts of your job lessoned.
Disadvantages to telling your boss, they will know that it is a long term condition and that you are likely to need time off more than most employees. They may be concerned as to how your illness will progress and wonder weather you are up to the job. They may be worried about incurring costs ie sick pay. They could worry about being sued if they are not providing the support that you are entitled to, or if they suspect your illness started with an injury in the work place. Is a case of weighing up the pros and cons and also predicting if your boss will be understanding or not.

October 4, 2015
A MyFibroTeam Member

Very tricky.

October 3, 2015
A MyFibroTeam Member

I sought protection under Americans with Disabilities Act (ADA).

October 3, 2015

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