Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 2, 2015
 · 
Reactions

Answer Summary

Members opened up about feeling deeply isolated by fibromyalgia, with many describing how they hide their pain to avoid burdening loved ones... Read more

Members opened up about feeling deeply isolated by fibromyalgia, with many describing how they hide their pain to avoid burdening loved ones or being dismissed by those who don't understand invisible illness. Several members shared strategies that have helped bridge the gap with partners, including bringing spouses to doctor appointments, sharing medical articles about fibromyalgia, and comparing it to diabetes to help others understand that lack of visible symptoms doesn't mean the condition isn't real. A recurring theme was the exhausting balance between advocating for oneself and managing the emotional toll of constant explaining, with many finding solace in this community where they don't have to justify their experience and can speak openly without fear of judgment.

A MyFibroTeam Member

No doubt, we find it easier to just smile through it.

October 3, 2015
A MyFibroTeam Member

Sometimes you just have to laugh .. My Dr. diagnosed me. I went to lunch soon after with one of my besties. I told her. Her response was " Oh that's funny, because that doesn't even exist". Hair pulling lol . I choose to ignore her ignorance and embrace the good things about her. This is simply a topic I can not share with her. Thank goodness for all of you!

October 3, 2015
A MyFibroTeam Member

My husband went with me when I was diagnosed as well, and he asked just as many questions and offered answers as well. Makes a big difference.

October 3, 2015
A MyFibroTeam Member

my husband knows and understands cause he was with me when the dr diagnosed me. he asked questions and my md answered them. plus i have shown him articles about all my diagnoses and he knows when i hurt really bad. he helps as much as possible. but every now and then he forgets so i remind him.

October 3, 2015
A MyFibroTeam Member

Even though they care and I know they understand I still feel like sometimes I can't talk... mostly because I feel like I'm just constantly complaining and no one wants to hear it anymore

October 3, 2015

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Austin, TX

A MyFibroTeam Member asked a question 💭
Lexington, KY

A MyFibroTeam Member asked a question 💭
Tallahassee, FL