Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 1, 2015
 · 
Be the first to react

Answer Summary

Members shared deeply personal strategies for managing nighttime pain and getting through the following day, with the overwhelming consensus... Read more

Members shared deeply personal strategies for managing nighttime pain and getting through the following day, with the overwhelming consensus being that sleep positioning with multiple pillows, recliners, or adjustable beds helps reduce pain, while medications like trazodone, gabapentin, cyclobenzaprine, and melatonin offer varying degrees of relief depending on the individual. Several members emphasized practical daily management techniques including making prioritized to-do lists, pacing activities without pushing too hard, taking warm Epsom salt baths with lavender, and consulting a sleep specialist for potential sleep apnea, which significantly improved quality of life for some. A recurring theme was the exhausting reality of severe sleep deprivation compounding fibromyalgia pain, the frustration of looking fine while suffering invisibly, and the essential need for self-compassion when accepting that some days certain tasks simply cannot get done.

A MyFibroTeam Member

Sleep Deprivation, ugh!!!

Our REM is the worst affected, which we need for adequate clarity, energy. Level 3 sleep, too. That's the morning restlessness and any irritability, even when I couldn't find my sneakers....

I've learned more about sleep through the sleep specialist and my CPap machine. I look forward to putting my mask on, even when just watching tv.

If anyone hasn't consuted w/ a Sleep Specialist, I trully recommend it, especially as we head towards weather changes.
LET

October 6, 2015
A MyFibroTeam Member

For me.........I like to take a hot bath with Epsom salts(magnesium) and some essential oil like lavender to try and help relax my body before i settle into bed for the night .Chamomile tea helps a lot too on the really tough nights i cannot sleep( sometimes i double bag it).I spray my pillow with lavender spray and my boyfriend will massage my neck,shoulders and back,which always settles me down and able to fall asleep.
Hope you find some rest!

July 11, 2016
A MyFibroTeam Member

I got a Craftmatic Adustable bed and I love it. I was sleeping in a recliner and away from my husband and I really did not like being in a different room every night to sleep. We got the King which is basically two twins and we can use our own settings. It has a massager as well. I declined on the heat because I get hot anyway. The price was not as bad as I thought it would be. I got it during a Christmas sale.

October 19, 2015
A MyFibroTeam Member

I have to take a muscle relaxer called cycobenzaprine

October 1, 2015
A MyFibroTeam Member

It seems to me that we are extremely sleep deprived and it only adds to out already bad pain. We stress out and worry because we still have things we have to do. We look ok to people, but we are going crazy with pain and I think if we just had more understanding, we would at least be comfortable just being and not try yo be something we can't be any longer. I truly pray that we find reliefs especially during the change of weather. Hugs to all 💖

October 6, 2015

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Norwich, UK

A MyFibroTeam Member asked a question 💭
Ellesmere Port, UK