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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
September 24, 2015
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Answer Summary

Members overwhelmingly confirmed that extreme light sensitivity is a common and frustrating symptom, with many requiring sunglasses indoors... Read more

Members overwhelmingly confirmed that extreme light sensitivity is a common and frustrating symptom, with many requiring sunglasses indoors and outdoors, heavy curtains to block sunlight, and some even living in near-darkness at home to find relief. Several members shared that the sensitivity extends beyond light to include loud noises, strong smells, and touch, with one member explaining that fibromyalgia rewires the central nervous system in ways that heighten all senses, making everyday environments feel overwhelming. A recurring theme was the need for practical coping strategies like moisturizing eye drops for dryness, finding very dark sunglasses, and seeking medical evaluation to rule out other conditions like optic neuritis or keratoconus.

A MyFibroTeam Member

Yes, moderate to extreme sensory sensitivity (light,noise, touch, smell, air pressure.etc.) is something I have seen occur with many many FM/Chronic pain sufferers. It can be incredibly overwhelming sometimes so figuring out coping strategies is essential. It IS real, it's not imaginary or psychological, our CNSs have been,and will continue to be (until the research catches up) "re-wired" in a way that none of us really understand but can't fail to feel happening to us.

September 24, 2015
A MyFibroTeam Member

My eyes are also extremely sensitive to light and lights but also don't see well in the dark.this disease tightens all your senses .my hearing is much more sensitive also .Everything is heightened, it's a drag !

March 17, 2016
A MyFibroTeam Member

yes i must wear sun glasses out side

September 24, 2015
A MyFibroTeam Member

Very much so, dryness and fatigue doesn't help. Or being over 40! Moisturizing eye gels and special drops.

March 6, 2016
A MyFibroTeam Member

My eyes have been Extremely sensitive to light since 2009. It's to the point where there are no sunglasses dark enough to wear when outside & especially driving. Even the lights inside are too bright. I live in almost darkness at home. I actually spend most of my days at home because of the light sensitivity. Anyone who knows of a very good inexpensive very dark sunglasses please let me know because I lost the ones that worked the best for me the other day. Thanks.

February 28, 2016

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