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A MyFibroTeam Member asked a question 💭
Port Charlotte, FL

Does anyone have numbness in their hands and when the hands aren't numb they are excessively painful?

September 18, 2015
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Answer Summary

Members widely confirmed experiencing painful and numb hands, with many sharing that the pain extends to their feet and is often worsened by... Read more

Members widely confirmed experiencing painful and numb hands, with many sharing that the pain extends to their feet and is often worsened by repetitive motions like typing, texting, or even brushing teeth. Several members described being initially misdiagnosed with carpal tunnel syndrome before learning their symptoms were actually caused by fibromyalgia, Raynaud's disease, or neuropathy, with one member noting they've burned themselves unknowingly due to numbness. A recurring theme was the challenge of finding relief, though some found temporary comfort in hot towels before bed, while others emphasized the daily uncertainty of symptom severity and the importance of giving thanks on better days.

A MyFibroTeam Member

Oh yes, I have had that problem since the early 90s. Of course I was told it was carpal tunnel, especially because of the type of job that I was doing in the Army. Since then I have had multiple test for carpal tunnel, as well as bone scans, MRIs. Cortisone shots, steroid shots, diagnosis of acute arthritis and tendonitis, and finally fibro. I have found if I do a lot of typing, texting, writing, or any type or repetitive motions, to include brushing my hair or teeth too soon before bed, the more it will keep me up at night. I have tried placing a hot towel on my hands before I go to sleep and it works , sometimes. I hope some of this helps.

September 18, 2015
A MyFibroTeam Member

My hands constantly hurt! Some days are better than others. Thanking God today isn't too bad!

September 19, 2015
A MyFibroTeam Member

Yes I have that problem also. I thought I had carpel tunnel in both for the longest time. I did the test and it turns out that I don't, its just the fibro

September 18, 2015
A MyFibroTeam Member

Yes my hands feet and legs. I was diagnosed with raynauds. Basically bad circulation x

September 19, 2015
A MyFibroTeam Member

Yes, I often look at them like I should be able to see something wrong with them. If they looked crippled as with RA they would look as they feel. My feet feel the same.

September 19, 2015

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