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A MyFibroTeam Member asked a question 💭
Forest Grove, OR

Has anyone seen an Endocrine dr? If you have did they do anything for you or find our you had something different Or new?

August 23, 2015
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Answer Summary

Members enthusiastically supported the idea of seeing an endocrinologist, with several sharing personal stories that highlighted how standard... Read more

Members enthusiastically supported the idea of seeing an endocrinologist, with several sharing personal stories that highlighted how standard thyroid tests can miss important issues, including one member whose friend's swollen thyroid turned out to be cancerous despite normal lab results. Several members mentioned practical strategies they've found helpful, such as taking liquid iodine for pain relief, consulting the resource Stop the Thyroid Madness, and advocating firmly with doctors when symptoms don't match test results. A recurring theme was frustration with being told everything is normal when symptoms clearly indicate otherwise, paired with strong encouragement to trust your instincts, seek specialist care, and persist in finding answers even when the medical system falls short.

A MyFibroTeam Member

I was told by a nurse to see an endocrinologist to see what my hormone levels are doing. I do know that 4 drops of Liquid Iodine has really changed my pain level. My thyroid tests all come back "normal", but I can tell from my symptoms that this isn't so! Also, a good link for thyroid is "stop the thyroid madness". Really has some good info and YES I would sure see and endo doctor! Just let us know how it goes!

August 24, 2015
A MyFibroTeam Member

I have wondered the same thing. I have a friend that all her thyroid tests keeper coming back normal, she went to endocrinology and her thyroid was swollen. Dr removed it, and it was full if cancer! Hormones are very important and if they are out of wack, that can make symptoms worse. After writing this, I think I may make an appt. What's the worse that can happen, they cant help us.

August 24, 2015
A MyFibroTeam Member

Makes me so mad I could have ended up in the hospital and hospital make me freak out and give me PTSD and all kind of fear.

August 24, 2015
A MyFibroTeam Member

I take medicine for Thyroid and mine is ok but they check me all the time. It helps to get things off your mind so you don't worry!

August 24, 2015
A MyFibroTeam Member

Making an appointment :-)

August 24, 2015

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