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A MyFibroTeam Member asked a question 💭
Pepperell, MA

So tough; I manage pretty well when I have just a few areas in pain but right now, it's just all over, every muscle from neck to even wiggling toes... So over this feeling..,

How do you all

August 13, 2015
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Answer Summary

Members shared their most trusted strategies for coping with overwhelming full-body fibromyalgia pain, with warm water therapies emerging as a... Read more

Members shared their most trusted strategies for coping with overwhelming full-body fibromyalgia pain, with warm water therapies emerging as a clear favorite, including hot Epsom salt baths with aromatherapy oils, heated saltwater pools, and the hottest showers tolerable. Several members described combining gentle self-care like foot soaks, heating pads, TENS units, electric blankets, massage therapy, and creative outlets such as painting with medications like NSAIDs, Tylenol, Flexeril, and Tramadol, though many noted these only take the edge off. A recurring theme was recognizing full-body pain as a signal to rest and be patient with yourself, leaning on pets and loved ones for emotional support, allowing yourself to cry when needed, and finding small comforts that help you get through another day.

A MyFibroTeam Member

I've learned to take it as a sign that I've done too much and take it easy. I'm not working right now which actually makes it possible, I've never been offered any pain meds stronger than Tramadol which barely takes the edge off. I have to be patient and wait it out, Hot baths are a great idea, only I have a small standard tub so getting in and out causes more pain. I have a heated saltwater pool and I float around or do some gentle water exercises. It is amazing how my pain virtually dissapears while my body is totally submerged in warm water! Unfortunately the pain returns as soon as I get out! Lately I'll go for a massage if I'm feeling really bad. It doesn't provide any lasting pain relief but it feels good in the moment, is relaxing and stimulates pain killing and happy hormones. Also will treat myself to a pedicure which feels good. Sorry you are in so much pain, hope you find something that helps. Just try not to overdo it.

August 14, 2015
A MyFibroTeam Member

I have taken strongly to drawing a warmer bath, calming soundscape music and using aromatherapy bath oils. Bath and Body Works has one of the best selections I have found but they can get a bit pricy. Wal- Mart carries a small line of products by Village Naturals. I try to not use heavy medications unless I absolutely have to due to the potential side affects they have. I hope this helps you. Have a blessed day! :)

August 14, 2015
A MyFibroTeam Member

You need to chk in with your loved ones. Even plp on this site. To get you thru the very bad day. Lay in bed. Shed some tears. Have your pet lay with you. It is very hard. I am so grateful for my twin on these days. She listens. I often think I cannot get up another day and work. But, for now, I do. I would give anything for that warm saltwater pool...

August 15, 2015
A MyFibroTeam Member

@A MyFibroTeam Member Walgreens carries an arthritis medicine/supplement that has capsaicin in it. It's by the other arthritis creams and pills. I, with my awesome luck, am allergic to capsaicin in cream form. But I can eat things with peppers just fine. My body makes no sense. I'm not brave enough to try it in pill form!

August 14, 2015
A MyFibroTeam Member

I take it as easy as possible, this is the time if I feel like doing something I dust. you can start and stop with this job and come back to it when you want. but just doing as little as possible and a hot bath feels so good and taking a nap or just laying down is ok when you have bad day

August 14, 2015

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