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A MyFibroTeam Member asked a question 💭
Glenrothes, UK
August 3, 2015
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Answer Summary

Members shared the difficult reality of working with fibromyalgia, with experiences ranging from leaving careers entirely due to pain and... Read more

Members shared the difficult reality of working with fibromyalgia, with experiences ranging from leaving careers entirely due to pain and fatigue to pushing through full-time jobs with medications, flexible accommodations, and frequent rest breaks. Several members described practical strategies that have helped them continue working, including taking medications like Gabapentin, Lyrica, or Nuvigil throughout the day, securing flexible hours or work-from-home arrangements, scheduling rest periods between tasks, and switching from physically demanding roles to desk jobs or part-time positions. A recurring theme was the constant tension between financial necessity and physical limitation, with many expressing fear about their ability to sustain employment long-term while others found relief through disability benefits or reduced schedules that allowed them to better manage their symptoms and maintain dignity in their daily lives.

A MyFibroTeam Member

I work 4 days/ week now but worked full time for many years as a nurse. I had to leave the clinical areas to take a desk job and some days are still very difficult. I find the fibro fog to be worse the older I get. I just try to get through each day one day at a time. It is hard to get up at 5 every morning. There are many days that I wish I didn't have to go to work at all. I have to work as I carry the benefits for my family. I just try to stay positive.

August 3, 2015
A MyFibroTeam Member

BrendaBaldeBrooks fibro fog is when your brain gets foggy. It's like when your half asleep. Like when you walk into a room but can't remember why, but it suddenly applies to everything. You have something to say, but you can't remember what it was. Your in the very middle of a sentence, and can't remember the next word. Then, while trying to remember the word, you realize you don't remember the topic at all, crap, why AM I in the kitchen. Oh, why do I have a plate in my hand?

That's the fibro fog. Like a sudden short lived burst of Alzheimer's. It happens most often before bed and after you wake up. But over time it starts happening whenever your tired. Then, sometimes it just happens randomly.

August 21, 2015
A MyFibroTeam Member

Jennifer that is a good description of Fibro fog. I frequently search for the next word of my sentence - it's on the tip of my tongue- but I just cannot pull it out of my brain. I am an extensive reader and writer so words should come easy, and used to before my fog days became so frequent that they out number my clear days. That's when I gave up my plan for vet school. Thanks goodness for my thesaurus! I can at least grab a word similar to what I am trying for, put it into the thesaurus and when I see it written down it my brain will acknowledge what I have been trying to say. I cannot do it all the time but it helps now and then.

August 27, 2015
A MyFibroTeam Member

I am a full time Certified Pharmacy Technician and run around a 4 story hospital for 8 1/2 hours which as you can imagine leaves me exhausted & in excruciating pain that being said for those 8 1/2 hours I am not solely focusing on my pain level. But I pay the piper when I get home.

August 4, 2015
A MyFibroTeam Member

I work a full time Receptionist position for the County I live in; I have to take my Gabapentin 3 times through out the day so that I can function better. I missed a couple of days and ended up in great pain. So that was a lesson learned. I make myself work through a lot of the pain because I know that I am the provider for my family as my husband is disabled; so I push myself to make it work.

August 4, 2015

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