How does everyone handle fatigue? I never feel like I've slept all all for the past ten years plus.
Pfft, I know what you mean! It's exhausting dragging myself through the day - like I'm walking through treacle. I wake up knackered before I even get out of bed. And supposedly non-strenuous, essential daily tasks (like brushing my hair, making brekky, getting dressed, etc) feel really difficult & tiring.
I have a 4 year old son to care for too, so I find myself truly exhausted by mid-morning. Many a day I don't get dressed myself because it's an extra job I haven't got energy for.
My son comes 1st so some days I don't have the energy to care for myself properly. X
If your sleep is broken, and you wake several times during the night, that's sometimes worse than no sleep at all. Broken sleep and exposing yourself to light means your body clock resets to needing another 8 hours from that point, so if the last time you wake is 4am and you turn on a light, and then your alarm goes off at 7am, your body now thinks it still needs another 5 hours! So even though you got 8 hours sleep if it's broken it's exhausting. I find if I haven't slept by a certain time I just decide to stay awake, from that point, that of course means my body will now do everything in it's power to put me to sleep, now I have decided to stay awake!!
Also because your sleep is broken and sleep happens in waves, it generally means you're not getting to stage 4 restorative sleep, the sleep beyond dreams that helps fix all the aches and pains, that mends the the strained muscles and over used parts... And so the cycle starts, no sleep = pain! pain = no sleep = pain= no sleep=pain! I think I see a pattern! and I love when people say well "all you need is a good sleep", well thank you captain obvious, if I COULD sleep I WOULDN'T be in PAIN!
They don't understand what we would give for a good nights sleep! For a solid 6 hours I'm not greedy, just 6 solid hours, no interruptions, no waking up, just 6solid hours!!
That's my problem too. I can cope with the pain and other symptoms but the fatigue is killing me. I'm dizzy and feel that to-the-bone exhaustion you get with jet lag. I can fall asleep at the drop of a hat during the day. Sleep at night is not great but not what I would think bad enough to cause this horrible tiredness. I had an old prescription for adderall and that definitely helped but it's such a pain to refill. My doc has now prescribed Provigil. It's expensive but if it helps, I don't care.
iPad, bright phones etc are the worst for if you're trying to sleep, if the only way to check you phone is tablet then turn down the brightness of the screen, but if at all possible don't put any screens on including TV, I'm one of the worst for picking up my iPad at night, so now I've gone analogue, if I have something I want to remember in the morning I have a dull light globe in the lamp by my bed, and pen and paper, to write whatever down, then try to go back to sleep... Try putting a kids night light in the loo and if needed the hall, etc so you can see but it doesn't trigger the light thing with your body, as with everything we FMS we need to adjust and adapt.
Love and light (but not too bright) Bec