Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Raleigh, NC

What is fibro fog?

July 10, 2015
 · 
Be the first to react

Answer Summary

Members shared their varied experiences with fibro fog in response to someone asking what it actually is, describing symptoms that range from... Read more

Members shared their varied experiences with fibro fog in response to someone asking what it actually is, describing symptoms that range from mild forgetfulness and word-finding difficulties to severe episodes of confusion, slurred speech, and dangerous driving incidents that left some feeling frightened and embarrassed. Several members emphasized that while fibro fog can be scary and frustrating, especially when loved ones don't understand or become upset, it differs from conditions like Alzheimer's because brain function remains intact even when symptoms feel overwhelming. A recurring theme was the importance of educating family members about fibro fog, seeking proper diagnosis from specialists, and taking safety precautions like avoiding driving during severe episodes.

A MyFibroTeam Member

My fibro fog is horrible. I hate this more than I do the pain. It scares me... that I will end up with Alzheimer's disease. My short term memory loss makes me forget important things, and friends and family get mad at me. They think I do it on purpose. It effects my driving, and I have almost been in an accident from it. One day I got my mind on something, my husband yelled, and I looked up and I was on the wrong side of the road. He ask me if I blacked out. I couldn't tell him what happen.
When I talk to people, I stumbble over my words, can't remember what I am trying to say... I could go on it is so embarrassing and ridiculous.

July 12, 2015
A MyFibroTeam Member

Go to a doctor and take your husband. I was in a fog for a month and it wasn't until it was over it that my family realized I couldn't help it. I made my son and his fiance read this site so they would know what I am going through.I would do that. You need to go to a pain center or rheumatologist so you can get diagnosed. Good luck and God Bless!!

November 8, 2015
A MyFibroTeam Member

@A MyFibroTeam Member @A MyFibroTeam Member This happens to me too. I am so confused right now as my husband gets angry or speaks to me in disbeleif when I can't remember something that he remembers! VERY FRUSTRATING AND EMBARRASSING, as I know he thinks I shouldcremember it because I know it!! At that moment in time I can't remember it at all, my mind is blank and I feel very hurt that he thinks I am just saying it! It is very embarrassing and is making me feel like I don't want to talk to him or anyone in case I can't remember something important or something I was talking about! Also, I get lost when I go out on a route I am fully aware of as I drive it regularly, but a few times I have just sat there not knowing which way I should go! I haven't got a diagnosis yet and that is frustrating me too. Xxx

November 8, 2015
A MyFibroTeam Member

I suddenly have typing dyslexia... I will be typing and type og instead of go. or ot instead of to. Drives me crazier than I all ready am. haha

July 14, 2015
A MyFibroTeam Member

@A MyFibroTeam Member Thank you for your the advice. I went to a Rheimatogist and she was rubbish, she didn't really listen to anything I said. She kept going on about muscle strength and focused on an ongoingvankle problem I have. I have spoken to my husband and family about how I feel Abbs about their insensitivity and they have read up on the Internet about it all so all understand a little more and are trying to be more helpful. My problem is still the diagnosis as I'm not sure what is is I have? I had a bad fall last night and hurt my shoulder, back, hips and kegs and today has not been good. This site is a great source of help and inspiration. Thanks again. Jayne Xxx

April 3, 2016

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Mobile, AL

A MyFibroTeam Member asked a question 💭
Middleburg, FL

A MyFibroTeam Member asked a question 💭