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A MyFibroTeam Member asked a question 💭
Lincoln, NE

I feel like I've been in a flare since 1990. I really never can say I've had a time when things were great. I have had times when things get worse, but then that's my new norm. Do any of you actually "get out of flare" like I've read about?

June 24, 2015
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Answer Summary

Members shared deeply relatable experiences about living with fibromyalgia, with many describing a reality where pain is constant and flares... Read more

Members shared deeply relatable experiences about living with fibromyalgia, with many describing a reality where pain is constant and flares represent a severe worsening rather than a departure from feeling well. Several members offered ways to distinguish between baseline pain and flares, describing flares as intolerable periods lasting anywhere from days to months, marked by extreme fatigue, flu-like body aches, heightened sensitivity to touch and temperature, and the need for complete rest or isolation to recover. A recurring theme was the frustration of never feeling truly pain-free, the difficulty of managing daily life during prolonged flares, and the importance of pacing, rest, water therapy, and self-compassion when navigating the unpredictable nature of the condition.

A MyFibroTeam Member

I never have a pain free day. Its either tolerable or intolerable. And the tolerable actually has sub categories....couch & rest with no meds....slow pacing to get housework done....or get it all done and collapse in the afternoon. Intolerable is meds and sleeping through the worst of it

June 25, 2015
A MyFibroTeam Member

@KathyColtrain-I'm never without pain, either. I also have whole body pain. I feel like I have a bad flu with the body aches. That's how I describe it to people. I tell them to think back on their worst flu day ever & then I say multiply that by 100. Recently, I've had burning muscle pain in my legs when I stand up. I feel like I just ran up the stairs to the Statue of Liberty! I don't know what's up with that! The exhaustion is the worst! I feel so useless! But at least some days I can do a little laundry or make dinner.

June 24, 2015
A MyFibroTeam Member

@PaigeKauffmanTaylor-My youngest daughter got married in April this year & I haven't been the same since then! I flew from CA to SC & back & stayed there a week. I don't know WHEN this flare will stop!

July 2, 2015
A MyFibroTeam Member

I do not go a day, an hour, a minute without pain, weakness, inability to expend much more energy than the most basic tasks require, but when I am in a flare, I cannot have any noise, light, pressure, heat...anything extraneous! Even lying on my tempur adjustable bed with my very specific sheets and blankets (always in layers as my body flushes between hour and cold even more so during a flare and I personally cannot handle heat) in my bedroom with its own a.c. set to exactly what I need, everyone I move a muscle, it feels like it's almost treating a cry from me. I will have temperatures of 3-5°F over my normal temp and the slightest touch of my skin against skin is as if I'm ripping sunburnt skin off with a powered sander.

I understand what you mean when you say you feel as if you have been in a constant flare because despite what the current medical journals say about fibromyalgia not being progressive, unfortunately we are much more likely to fall victim to the overwhelming associated illnesses, symptoms, syndromes, and diseases, so we feel as if it started off as a snowball and we are now each a full-blown avalanche because no matter all of the many, many things I've tried to help ease my pain, my conditions, my situation...in the end, I feel as if my avalanche keeps gaining speed and taking on more hard ice and slamming into thousands more trees.

June 24, 2015
A MyFibroTeam Member

I am newly diagnosed but think I had a flare in December of last year. I felt SO old and tired and hurt all over with literally knots in certain places. I had to go to the chiropractor for 2-3 treatments a week. The pain would move once I got one place under control. Then it seemed to die down. Unfortunately, this lasted for about 4 months....

July 9, 2015

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