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Hi everyone, I'm currently undiagnosed but have been suffering symptoms of fibromyalgia for more than a year now, but am quite disappointed with the attitude of previous doctors I'm curious about your doctors attitude when you first thought you might have fibromyalgia
My first doctor had a very dismissive attitude and acted as if she thought I was making it all up, did various blood tests, then referred me to a neurologist
The neurologist was a psychiatrist who asked a few questions about my… read more

June 24, 2015 (edited)
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Answer Summary

Members shared frustration about the long, difficult journey to receiving a fibromyalgia diagnosis, with many describing years of dismissive... Read more

Members shared frustration about the long, difficult journey to receiving a fibromyalgia diagnosis, with many describing years of dismissive doctors, endless testing, and being made to feel they were imagining their symptoms before finally finding a physician who listened and validated their experience. Several members discussed medication combinations that have helped them manage pain and other symptoms, including Cymbalta, Lyrica, tramadol, gabapentin, and amitriptyline, though responses varied widely and some experienced challenging side effects. A recurring theme was the critical importance of self-advocacy, persistence in seeking referrals to rheumatologists or pain specialists, not accepting dismissive treatment, and remembering that doctors work for the patient, not the other way around.

A MyFibroTeam Member

If your insurance allows you to self refer then do that. Try a rheumatologist and don't hesitate to call Dr offices and ask for results, referrals, or whatever you need. I worked Dr office for 20 years. Things get lost,misplaced, or are in a foot tall stack on the dr. desk. You just have to be persistent and if you aren't getting the care you need, then find another Dr. A lot of us have had to see a few docs before we found one that worked with us and didn't dismiss symptoms. Hugs and happy thoughts.

June 25, 2015
A MyFibroTeam Member

Hi there, I'm new to this site but also newly diagnosed, like yesterday.. Officially diagnosed yesterday but ended up in hospital a few months ago and the doctor diagnosed me then however I was just waiting for an actual diagnosis from a rheumatologist. I've been back and forth to the doctors for the past 8 years now and been pushed from one person to the next, even having operations, scans, MRI's. Anyway, last year I asked my doctor about fibro because it seemed to match up to everything I was suffering with and he totally dismissed me saying its a horrible thing to have and that I wouldn't want it etc etc.. But was just saying come back in such amount of time, after I ended up in hospital and the hospital saying I had fibro I went back to the doctors but to see a different doctor and even though he had the letter from the hospital he was still trying to dismiss the fact I have fibro. So where I could have been diagnosed it years ago the GPs were just trying everything they could to ignore this condition. I'm still along way of as the consultant thinks I have something else and has put me for an MRA, along with 5 blood tests which I had yesterday and referring me to a urologist as well.

June 24, 2015
A MyFibroTeam Member

I had pain for years.... I now know I had Fibromyalgia since I was about 15 or 16, but wasn't diagnosed officially till I was 40. I happened to be in a lot of pain and my GP was not in on that particular day, so I saw a physicians assistant . The PA listen carefully to my symptoms and called me over to his office to look on his computer. He looked at fibromyalgia and we went through the symptoms and he said I think you have Fibro. I can't thank God enough for that day I sat with the PA and he diagnosed me! I spoke to a friend who had Fibro and luckily she was seeing a specialist who only focused on Fibro patients. He confirmed the diagnosis but his treatments weren't very helpful . I then turned to my neurologist who tried a few different meds all of which had terrible side effects for me. Later I saw a Rheumatologist, just to try to a few other meds, some worked a little others had unbearable side effects. It has been a long road, many years, many tests, many doctors, and even those who do have some experience with fibromyalgia patients still don't have much to offer. Patience, prayers, positive attitude, supportive family and friends is what keeps me going!

June 26, 2015
A MyFibroTeam Member

What people tend to forget when dealing with their Dr.'s and I am one of them is that the Dr. is working for you. Having said that the Dr. needs all the info that you have to offer to be able to get to the root of things. My Dr. had me feeling like I was a bit off in the head and I have to say I was very frustrated with it so I did my research and printed it off anything that was related to my symptoms and presented it to my Dr. then I started to request referrals to other avenues such as sleep clinic, MRI, CTscans and neurologist. When I did that by taking charge of what I wanted done things started coming back and avenues to a diagnosis surfaced. You don't have to deal with the attitude as I said earlier they work for YOU, take charge and demand that tests are done.

June 26, 2015
A MyFibroTeam Member

Get to a rheumatologist.If he or she are any good they will understand and give you meds to help you.I have tried two different kinds,one was lyrica(not good for me)Now I am on Cymbalta which has helped me a lot!Good luck and God bless you!

June 25, 2015

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