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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Have Sjogrens??

A MyFibroTeam Member asked a question 💭
Happy Valley, OR

I was just diagnosed with Sjogrens. Besides the dryness of Mouth,skin,eyes etc, what else have you found has come up? Is it hard to tell where Fibro Symptoms end and Sjogrens begins?

June 23, 2015
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Answer Summary

Members shared their experiences navigating the overlap between Sjogren's syndrome and fibromyalgia, with many finding it challenging to... Read more

Members shared their experiences navigating the overlap between Sjogren's syndrome and fibromyalgia, with many finding it challenging to distinguish where one condition ends and the other begins. Several members discussed practical treatments and medications, including Plaquenil (which requires annual eye exams to monitor for retinal issues but is generally considered safe), Evoxac for stimulating saliva production, and special mouth rinses for managing dry mouth and painful oral symptoms like clogged salivary glands, sores, and swelling. A recurring theme was the compounding effect of multiple autoimmune conditions, with members describing how Sjogren's intensifies pain and fatigue beyond fibromyalgia alone, yet many found hope in proper treatment and regular monitoring.

A MyFibroTeam Member

For me the Sjorgen's causes Slavia glands to clog and the come up almost like an abscess and until it actually burst is very painful. The fibro makes me so tired but the Sjorgen's makes the pain in my mouth so bad I can't sleep.

June 23, 2015
A MyFibroTeam Member

@A MyFibroTeam Member So sorry to hear about your diagnosis Wendy the Fibro in it's self is enough to deal with. I have a link hear for you it breaks it all down.
http://www.mollysfund.org/2014/04/sjogrens-synd...

June 23, 2015
A MyFibroTeam Member

I was diagnosed with sjorgens when I had 5 small growths in my tongue removed and they biopsied it. I take evocac to produce saliva and it seems to help with the glands around mouth and neck. Sorry about the pain. It also has accelerated pain and fatique...

June 29, 2015
A MyFibroTeam Member

I have the exact same diagnosis ( lupus. Sjogrens and Fibro) and i have been taking Paquinil for about 4 years. I had my yearly eye exam two weeks ago and everything is fine.

June 23, 2015
A MyFibroTeam Member

@A MyFibroTeam Member I have been taking Plaquinil for quite some time. It has helped my joints hurting. Don't worry to much about the medication. It's pretty safe as long as she gets her eyes checked once a year or so. They can detect any problems with the Retina.

June 23, 2015

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