I can sleep all day at times and then other times when I've been up all day I can't get to sleep at night!

I've tried everything over the counter you can buy. If it helps, it only lasts for 2 nights at the most and then it stops working? It doesn't matter if I nap during the day or not, it's just plain weird. And then, like yesterday, I fell asleep around 8, slept till 11:30, got up for 1/2 hour and went back to sleep till 5:30. 9 hours of sleep in a 24 hour period! Now I'm scared that I've pushed myself to hard the last few days and I'm gonna have a flare! my feet are killing me and my neck,shoulders and arms. More than usual. I've become so sensitive to my body talking to me, that it's become a lifestyle now. Being sick sucks!

Yes to both. I just sleep when I can and read or get on my tablet when I can't sleep.

I am currently coming off a full week of sleeping, like I have been hibernating for the winter, no sleep pills. Winter hurts me so bad that’s all I can do. But now I will probably be up now for a few days, grr!

I have a problem going to sleep so I take Ambian, then in the mornings I have to get up because if I stay laid down my body hurts more from just laying around. When I get-up and start getting motivated I am able on some days to do alot of things and some I go from bed to living room chair and that is it.