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A MyFibroTeam Member asked a question 💭
Bourbon, IN

Has anyone gone to the er when the pain gets unbearable? Do they hep or just blow it off cuz the fibro diagnosis?

June 8, 2015
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Answer Summary

Members shared mixed experiences when seeking emergency room care for unbearable fibromyalgia pain, with some reporting that ER staff... Read more

Members shared mixed experiences when seeking emergency room care for unbearable fibromyalgia pain, with some reporting that ER staff dismissed their concerns or said there was nothing they could do, while others found relief through IV pain medication or had doctors who carefully ruled out other serious conditions before attributing symptoms to fibro. Several members described the agonizing nature of their pain, particularly severe hip pain that makes sitting, standing, and walking nearly impossible, with some finding relief through medications like Lyrica or working with pain management specialists. A recurring theme was the frustration of being caught between debilitating pain and a healthcare system that often does not view fibromyalgia as an emergency, leaving many to advocate fiercely for themselves while navigating insurance barriers and the fear of being labeled as drug-seeking.

A MyFibroTeam Member

I have been to ER once and they were ok. They were very careful, I had terrible lower back pain and they ran tests to make sure it wasn't just the fibro. They were concerned it was a kidney infection. The nurse asked lots of questions and told me they were nervous with fibro patients as they didn't want to just blame symptoms on fibro incase it was something else. She asked lots of questions about if it was a different sort of pain or the normal pain but really intense. Upon tests coming back clear they weren't that helpful, just gave me more pain meds which didn't work and sent me home a few hours later.

August 14, 2016
A MyFibroTeam Member

I have many times. Sometimes some narcotic IV meds help me. Knocks me out for a little. I have had mostly good expierences in the er. If you are upfront about everything they are pretty nice. And most er workers get to know the difference, seekers and real pain.

February 16, 2016
A MyFibroTeam Member

Yes, I have been to the emergency room twice and then spent a week in hospital before I was diagnosed with Fibro. It took forever to diagnose me with it.

June 28, 2015
A MyFibroTeam Member

My family doctor referred me to a pain management doctor. He is part of my support team and I see him once amonth.

June 9, 2015
A MyFibroTeam Member

I told my doctor that I almost went one time to the ER and he said that they wouldn't have been able to do anything for me. I don't know if that's true are not.

June 9, 2015

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