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A MyFibroTeam Member asked a question 💭
Rochester, NY
March 21, 2015
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Answer Summary

Members enthusiastically shared their experiences with low dose naltrexone for fibromyalgia, with many reporting significant pain relief and... Read more

Members enthusiastically shared their experiences with low dose naltrexone for fibromyalgia, with many reporting significant pain relief and improved quality of life, though most noted it took several weeks to feel the full benefits and some experienced vivid dreams initially. Several members emphasized practical details, including that LDN must be obtained from compounding pharmacies, is typically taken at night after 9pm, costs are often out-of-pocket since insurance may not cover it, and dosages range from 1.5mg to 4.5mg depending on individual needs. A recurring theme was hope and encouragement, with members describing LDN as life-changing after trying numerous other medications without success, and urging others to be patient through the adjustment period and keep their doctors informed throughout the process.

A MyFibroTeam Member

Hi, I started on LDN about a month ago, 4.5mg capsules that my Dr ordered from their compounding pharmacy. I must say it has helped me tremendously. He even put me on butrans patch but I don't even use those. I tried just about everything and nothing else helped with my fibromyalgia. If your dr will prescribe it, please give it a try. They say it can take a couple weeks to feel the benefits but I noticed the first day. No side effects either. Love this medication.

September 6, 2016
A MyFibroTeam Member

I found that it took several weeks. So don't give up. I had some colorful dreams and Nothing to worry about. I started at 7 ml the went down to 6.5 . It is a mixture drug so I have to get it from a pharmacist that works with compound meds. I was told by Md that it will be a gradual feeling of Wellness and it was. When I first took it the taste was horrible. The pharmacy can add flavoring. Much better. Keep us posted I have been on it for over 2 years. Yes in larger dosages it helps with withdrawal of alcohol and narcotic use. It's such a tiny dosage that I don't worry. I still have flair ups when something happens physically and stress. I think it may be less of a flair and easier to recoup. I never have felt woozy or off kilter while taking this. I was also told to take it after 9pm each night

March 24, 2015
A MyFibroTeam Member

I stared in November using it in combination with Topiramate. I am not going to lie it was a very rough transition but so worth it. For the first time in over a year and a half I have had days even weeks with no pain! I feel like I am actually going to get my life back. I do have mild pain today but nothing like it was before and feel I can handle it by just using a vibrating heating massager on my legs. What a blessing. On the LDN I take 1.5 MG 3 times a day and I take 50 mg of the Topiramate 3 x per day. I also take 30 mg of Cymbalta 2 x per day my new dr took me off everything else and I feel a million times better.

December 7, 2015 (edited)
A MyFibroTeam Member

I have a friend who uses it and says it really helps more than anything else, with less side effects.

October 9, 2015
A MyFibroTeam Member

My wife has been taking it in the morning. I've read a few accounts of people taking it at night, maybe I should suggest that to her. Thank you for your post!

March 24, 2015

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