I have had this a long time and I have seen doctors that have told me it was because I was not active enough when I could barely walk into the office. They said it was a muscle thing, no cure, but it would not cause any permanent damage. My point is find a doctor who will listen and help you and not make you feel insecure, insane ect. I cannot remember how many doctors I have been through. I have been yelled at belittled until I said enough! Just by chance I met a woman who had fibro and I told her I was looking for a doctor and she gave me hers. I went, gave all my info to an intern who ask what would I like Dr. Chapman to know about me. I said I want him to know I am NOT a drug addict I am in Pain! I heard him through the door telling him those exact words and he has been my doctor ever since. He has helped me live again and to get out of bed. He would try this or that until something worked. If one pain area got too bad he sent me to a pain specialist who helped me take a trip to Chicago with friends and enjoy it! Don't keep seeing someone who is not helping you that is my advice. Don't be ashamed you cannot do what you used to do you are ill and just because fibromyalgia has been the butt of jokes and disbelief it is still a painful and awful disease, syndrome whatever they want to call it. It does effect every part of your body, the pain wears you down. But with the right doctor it helps you to have days you can enjoy life. I also push for marijuana to be legalized because it also helps with pain and at least its natural. One more thing be careful of the drugs they want to put you on research them all, side effects and the ability to get off them. Sorry for the long rant and wish you the best of luck!

The emotional side effects of grieving for some pieces of your life that are gone or changed forever and the anger at the betrayal of your own body. Doctors are finally on board in "believing" in fibro but your friends, family, and others see a normal looking person and can't grasp the level of pain. In my case, most people just tell me to lose weight.

Only had a doc prescribe Savella about a year ago. I wish I had it from the beginning. It helps more than anything though lif is still very fatiguing and painful at times . My crash and burn days are farther apart now.

One thing I wish I knew from the start would be if all I can do in one day is get out of bed and move to the couch that is ok. Not to feel guilty for not being able to do the things that I once did everyday. I am a live, I do what I can, I take one day at a time and that is enough because I have learned to love my imperfect self.

Amen to everything Susie said. Research is a proactive thing you can do. When I was diagnosed in 2009 there really wasn't a lot of info and a lot of doctors did not believe it was a real ailment. Now thank God it is a real diagnosis...