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A MyFibroTeam Member asked a question 💭
South Jordan, UT

My doctor wants me to do a sleep study. Does anyone else have sleep apnea? Do you think it is associated with your fibromyalgia?

March 13, 2015
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Answer Summary

Members responded to a question about sleep apnea and fibromyalgia by sharing their diverse sleep study experiences, revealing diagnoses that... Read more

Members responded to a question about sleep apnea and fibromyalgia by sharing their diverse sleep study experiences, revealing diagnoses that ranged from moderate to severe sleep apnea (with breathing interruptions as frequent as 28 times per hour) to restless leg syndrome, narcolepsy, and frequent arousal disorder. Several members described mixed success with CPAP machines, with some finding significant relief when paired with BiPAP or oxygen therapy while others struggled with discomfort and removed masks in their sleep, leading them to explore alternatives like side sleeping, body pillows, or waiting for custom mouthpieces. A recurring theme was the strong belief that sleep disorders and fibromyalgia are interconnected, with many members viewing sleep apnea as a secondary condition that worsens pain and fatigue, underscoring the importance of pursuing testing even when symptoms seem mild or absent.

A MyFibroTeam Member

I was diagnosed with sleep apnea Dec 2013. My sleep showed that I would stop breathing 28 times per hour making it moderate to severe.. I use CPAP which has helped tremendously however I still do not get a good night's sleep.. Got my fybromyalgia diagnosis just a few months ago. I believe they are linked...

March 13, 2015
A MyFibroTeam Member

RobinC - When I first started using the CPAP I to kept taking it off at night. It's a matter of getting used to it. As soon as I realized it was off I would put it back on. At the time I also had a cat that would walk on my chest and wake me up if I took it off.

I also sleep on my side and I have my arms stretched out so they aren't completely under my side. (I'm happily divorced) I don't have carpal tunnel. You may want to look into a body pillow or support pillows. If I don't sleep with my body pillow I have trouble sleeping.

I also have ADHD and OCD. I have problems with tactile sensitivity but also with bright lights, loud noises and smelling chemicals. Some of these problems are secondary to fibro and arthritis.

Hang in there and keep trying. Many things that people find works for them is through trial and error.
Hope you feel better.

March 19, 2015
A MyFibroTeam Member

I can understand this, but here is my thoughts. First I have always slept great. Yes I do snore (or so my kids claim), but I have always felt like I slept good and I wake up refreshed. Second, my initial sleep test came back normal. I can see that sleep apnea can be secondary to FM, but i can't believe it as a cause, or that everyone that has FM has to have sleep apnea.

March 18, 2015
A MyFibroTeam Member

I did a sleep study a few years ago because my doctor was absolutely convinced I had sleep apnea due to both my size and Fibro. It turned out that I don't have sleep apnea. I do, however, have narcolepsy, restless leg, and periodic limb movement disorder. The doctor who did my study said my body moved all night long. It wasn't always visible to the naked eye, but it was caught by the sensors. He said it's no wonder I'm always tired because I run a marathon every night.

I think Fibro and sleep disorders go hand in hand.

March 14, 2015
A MyFibroTeam Member

A BiPap is just like a CPAP but it feeds Oxygen into the hose. I'm on the borderline of needing the oxygen but it does help. There are a lot of secondary diagnosis. As I unpack if I find the book I read, I will let you know.

March 14, 2015

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