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A MyFibroTeam Member asked a question 💭
Guelph, ON

I have experienced this several times over the last 2 years. My face feels as if novacaine is wearing off after being to the dentist. I ended up in the ER in December of 2013 because I thought I may be having a stroke. Any info or similar experiences would help. Thanks.

March 6, 2015
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Answer Summary

Members connected over the frightening experience of facial and tongue tingling with fibromyalgia, with many initially fearing they were... Read more

Members connected over the frightening experience of facial and tongue tingling with fibromyalgia, with many initially fearing they were having a stroke before learning it could be related to their condition. Several members shared potential contributing factors including trigger points in the neck, TMJ issues that can be helped with dental splints and moist heat, trigeminal neuralgia, dehydration, and medication side effects, with strong encouragement to rule out serious neurological problems before attributing symptoms solely to fibro. A recurring theme was the importance of self-advocacy and not accepting every new symptom as normal, as doctors sometimes miss other conditions by writing everything off to fibromyalgia.

A MyFibroTeam Member

I get that and pain in my face for trigeminal neuralgia Also known as suidcide syndrome

March 7, 2015
A MyFibroTeam Member

I get tingly lips

March 14, 2015
A MyFibroTeam Member

I experience partial numbness in only the left side of my face, and it scared me senseless the first few times it happened.

I actually started having those feelings before my pain got so severe that I sought a diagnosis. My doctor shrugged off the facial numbness when I first brought it up, and he never did reconnect it to fibro after he diagnosed me, but I notice many people have it listed as a symptom.

February 19, 2018
A MyFibroTeam Member

@A MyFibroTeam Member. I can understand worrying about a stroke! My dad had one at 58. I'm glad that wasn't the deal. Bell's Palsey isn't a walk in the park either so I'm glad they ruled that out. I hope the Rheumatologist has something planned to help you out with this. It's unlikely to be meds but I've noticed that when it comes to medications and fibromyalgia somehow we seem to get those odd side effects seldom seen by anybody else. It's bizarre. I wish we lived closer together. If it is trigger points in the head or neck my hubby could find those babies and fix it for ya!! I'm extremely lucky in that!! I hope your week is filled with low pain and high energy days!

March 24, 2015
A MyFibroTeam Member

Thanks Dawn. I had these same symptoms in December of 2013, and I went to the ER because I thought I may be having a stroke or having the start of Bell's Palsy. I was examined at the ER, and I was not exhibiting any stroke symptoms--slurring, sagging face on one side, confusion, weakness...........I also had a CT scan at the time and it was "normal". The tingling comes and goes, just like my other Fibro symptoms. I am going to see my Rheumatologist on Monday, and I will ask her about it then. I do take Plaquenil for my RA, Coversyl for my Hypertension (only 2 mgs) and Effexor. I will look into the meds. Thanks again!! :)

March 24, 2015

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