I have recently had a very painful flare up centered in my foot. It often happens that my flare ups are centered in specific areas. Is this common for others as well?
Fibro used to do that to me but because of arthritis and whatever they said was pseudo gout? Plus stupidity getting a knee replacement by an incompetent, . Fibro now
Hangs mostly in the knees and also… read more
How do people cope when a family member does not understand about the effects that fibromyalgia has on you, to the extent that you are being accused of faking it just to get out of work! When you try to sit down and discuss things you get told to 'shut up' or 'I have pain to and have to get on with it'! (Especially as this family member has been told options to treat pain but refuses treatment!)
Gentle hugs
I just got diagnosed a few weeks ago with Fibromyalgia. I have had scalp tenderness on and off for years. I've talked to a few of my doctors about it. No one has given me answer.
Such good advice. I try to take care if I have any problems. Thank you
I do have IBS. WOW. They reclassified it. Yes, most people have no idea when I say I have Fibro. But some do. IBS comes and… read more
I can no longer take anti-inflammatory drugs, after 17 years my kidneys have said "no more!" . So, I was forced to change my diet in order to keep my kidneys as healthy as possible. This was a slow process over a couple months that we've been living for almost a year now. Our diet now looks like this
A. No processed foods
B. No breads, little to no pastas, rice or heavy starches
C. Heavy fruits and vegetables
D. Nuts, some whole grains: farrow, lintels, quinoa, chia seeds
E. Very little… read more
Yes!!! I started a LOW FODMAP diet over a year ago and my pain and brain fog is pretty much gone. I slip up now and then and have something that is high in Fodmaps but the ensuing pain is not worth… read more
I have always been great at keeping up with appointments. Lately i have to write everything down in a planner. Now i am writting them on the wrong days and/or months or just not at all. I can not get my head together and it is very disheartening to me. I cant seem to remember much or it is all jumbled up in my head.
I put them in my phone so I get a reminder.
I was given some great resources today at a meeting I went to.
One of those resources was some great apps.
Below are a list of these. Hopefully you can find one or more of these that can help you in your daily life.
Mind Box
My Calm Beat
What's up
Box Breathing
Headspace
Insight Timer
The Sleep School
Some of these you mentioned like the breathing that is part of physical therapy learn to relax it's all about your breathing that causes the pain in some. They say I haven't felt any different it… read more
Just wondering how many of you have been diagnosed with either or both ..... and was it before or after your fibro diagnosis?
Also, any of you who haven't been tested .... are you curious to whether you have it and will you consider asking your doctor for a test?
Huggs everyone :)
In my 20's I had anemia but no reason was given for it.I have always had a good bit of energy so it didn't effect that,when I was pregnant had to take iron injections it was so bad and for… read more
This is not a question.
I wanted to take a moment to remind everyone that on this site and any site there are not good people. People who will Give you false hope n false medical advice. They will pretend to be people they are not.
Please do your own research. Weather they post a great sounding theory or send a link. There is a lot of fake stuff online. We all need to remember to do our own research. We need to do what is medically necessary for ourselves.
I just wanted to remind all my… read more
Thank you for posting this. What works for 1 person may not work for you. It is a journey we have to take on our own.
Does anyone have earaches and scalp pain. The other day I had a weird pain in the right side of my throat, my right ear gets pains in it and my scalp is sensitive on the same side.
I have earache regularly and my ears are very sensitive so have to be careful when drying my hair for example. At the start of a new flare my throat glands swell and I get a sore throat for 2 or 3… read more
When I saw this meme I immediately thought of this site❣️ There is so much genuine care for one another.
As I'm not able to be here quite so often at the moment, I would like to let all of my team, of incredible strong, resilient, funny, kind and brave Warriors, know how much I appreciate your wonderful support and friendship
This site has been a haven, and a safe place of understanding. I have never felt judged or disbelieved, only safe and loved đź’•
It warms my heart to read all of your… read more
God bless you!