Questions & Answers

Does your brain fog and memory loss get worse under stress or is it consistent?

I can't sleep at night at all, so during the day I and very sleepy and find myself waking up without remembering falling asleep. I slept from 7am to 7pm! I have no idea! I could not keep myself awake. Does anyone have this?

What can I do to help with my foggy brain? I'm a nurse and get really embarrassed when I can't think of my words.

I suffer with fatigue more than pain, or maybe I manage/cope with the pain better than I cope with the fatigue.

I have well-meaning friends who say things like “how’re you sleeping” or “have you tried lavender?”... etc and I get so frustrated that people don’t understand, it’s irrelivant how much sleep I’ve had, it does not refresh me and I’m still fatigued, day in, day out, no matter what I do or don’t do.

One description I’ve come up with is “it’s so tiring to move and my body feels so… read more

I have a friend who does not understand my fatigue level. She constantly is on the go and says "I only slept 2 (2-4 usually) hours last night" . The thing that upsets me is she says "just drink an energy drink" on a consistent basis. I've tried to explain it is not the same thing as just being "tired".

Does anyone have any suggestions on how to handle these scenarios?

Thanks in advance!

How long on average does a flare up of symptoms usually last. I'm quite newly diagnosed but I m still struggling with daily fatigue. I'm taking herbal suppliments to help me get a few hours sleep and same for energy but nothing works

The other day, someone I have known since childhood asked me to explain what it was like to have fibromyalgia as she has a relative with it and would like to understand better. Once I candidly explained what it was like, the reply came back that my symptoms must be much, much worse than the people she knew with it because she can only sometimes tell that it is bothering them. My answer to her was this. Please be aware that people with fibromyalgia are so tired of having people disbelieve them… read more

Hi folks! Wanted to share my experiences with a company named Wellness Product. They offer a free trial of CBD tinctures and capsules. Cancelled my subscription in time, and found out that they had taken$79.95 out of my account. When I called them to complain, they told me that the only way I could get a full refund, I would have to ship back the unopened products, for a shipping total of $11.90. They told me that the best they could do was send a 50% refund. Guess it was free to look at the… read more

When I was first diagnosed, I was exhausted and achey all over. Mostly in my back and knees and it would wax and wane. Now the pain has spread through my entire body including my wrists, ankles and feet. Every morning when I wake up I dread getting out of bed because I am so stiff and sore, my pain level is a 10. My back, shoulders and neck are extremely sore and tender ALL the time, and I need to rest with my heating pad a few times throughout the day. This was not the case when I was… read more

Has anyone besides myself have experenice tooth loss or teeth breaking??? I have when I was 13 my mom put braces on my teeth after I got them removed at 15 and from then on I got alot of comments of how pretty white and straight my teeth are. Ever since I was 20 years old is when the dentist notices some receeding gum line. After that my teeth would move and I started grinding my teeth so they gave me a bit guard well I bit threw that. Anyways my teeth started turning to crap around 2010 it… read more