Working as a n RN in a hospital finally got too much…went back to school, earned an MS in mental health counseling and worked as a psychotherapist for many years before I had to give that up as well.
August 5
Unfortunately after many years of trying to fight it, I finally had to give in and go on disability. It certainly wasn't how I wanted to retire but given the circumstances I had no choice. Too much missed time because of flare ups, illnesses, well you all know. Anyway, I did find, that after I retired, I think because of less stress about how I was going to manage my shift at work , the flares became a little less often . They haven't gone , I still have days I can't wear clothes because they hurt my skin , but overall retirement has helped me.
August 5
Struggling to keep working with fibromyalgia is something many people on MyFibroTeam can relate to deeply. The combination of pain, fatigue, and unpredictable flares can make holding down a job feel incredibly difficult — and that's not a personal failing, it's just the reality of living with this condition.
Here are some Show Full Answer
Struggling to keep working with fibromyalgia is something many people on MyFibroTeam can relate to deeply. The combination of pain, fatigue, and unpredictable flares can make holding down a job feel incredibly difficult — and that's not a personal failing, it's just the reality of living with this condition.
Here are some experiences shared by MyFibroTeam members:
- One member applied for disability benefits, only to be told they weren't "sick enough" and that they could still hold a full-time job — which felt devastating given everything they were managing daily.
- Another member returned to work but made the decision to stop pretending to feel well, letting colleagues see the real impact of fibromyalgia rather than putting on a brave face.
- Some members have shifted to self-employment or flexible work arrangements so their schedule can adapt to their body's needs on any given day.
The path looks different for everyone. Some people pursue disability benefits (though it can be a frustrating process), others find ways to modify their work situation, and some step back entirely to focus on managing their health.
Whatever direction feels right, know that others on MyFibroTeam have walked similar paths and can offer real, lived support and advice.
August 5