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March 23
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A MyFibroTeam Member

I believe that widespread pain is one of the more common symptoms that most experience. As you know, there are so many more symptoms. Some seem very common to most Fibromyalgia patients and some are so rare that it’s hard to tell if fibro is the reason. It’s one of the many things that make our condition so difficult to diagnose and treat.

Edited to add… I was just told that menopause could be causing my symptoms and not fibromyalgia. I had these symptoms well before menopause. Menopause has increased the severity of my symptoms. We continue to fight with the people who are supposed to have the most knowledge to help us.

March 23 (edited)
MyFibroTeam

Why is fibromyalgia called "widespread pain" when there are other symptoms besides pain?

Widespread pain is the defining symptom of fibromyalgia, which is why it's often described this way. However, you're absolutely right that fibromyalgia involves much more than just pain.

The term "widespread pain" specifically refers Show Full Answer

Why is fibromyalgia called "widespread pain" when there are other symptoms besides pain?

Widespread pain is the defining symptom of fibromyalgia, which is why it's often described this way. However, you're absolutely right that fibromyalgia involves much more than just pain.

The term "widespread pain" specifically refers to pain that occurs on both sides of the body and in both upper and lower areas. This is actually one of the main diagnostic criteria doctors use.

But fibromyalgia comes with many other significant symptoms, including:

- Fatigue (reported by nearly 89,000 MyFibroTeam members)
- Cognitive problems and difficulty with thinking and memory
- Sleep issues and waking up feeling tired
- Headaches
- Morning stiffness
- Anxiety and depression
- Numbness and tingling

A MyFibroTeam member described it well: "I refer to it as a headache all over your body" - but that still doesn't capture the exhaustion, brain fog, and other challenges.

The focus on pain in the name doesn't mean other symptoms are less important. In fact, to diagnose fibromyalgia, doctors must confirm you have widespread pain, fatigue, cognitive issues, and wake up feeling tired - all lasting at least three months.

March 23
A MyFibroTeam Member

I think because wide-spread pain everyone has, whereas other symptoms something people do and some don’t have it.

March 26
A MyFibroTeam Member

I'm unsure about who decides. I'm learning that a lot of people that do
not live with this disease is putting out information on this.

March 23

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