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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does anyone else experience non epileptic seizures caused by extreme fibro pain? It's a new symptom for me that I didn't know was possible.

A MyFibroTeam Member asked a question 💭
Coventry, UK
March 10
 · 
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Answer Summary

Members opened up about experiencing non-epileptic seizures triggered by extreme fibromyalgia pain, with several sharing that their doctors... Read more

Members opened up about experiencing non-epileptic seizures triggered by extreme fibromyalgia pain, with several sharing that their doctors explained these episodes as stress responses from the body being overwhelmed by severe pain and exhaustion. Many members described stroke-like symptoms during episodes, including numbness, slurred speech, body contractions, and temporary paralysis, with some waiting out episodes at home once they learned to recognize the warning signs. A recurring theme was the challenge of finding effective treatment when doctors are reluctant to adjust medications, though members mentioned potential options including medical cannabis, muscle relaxants, myofascial release therapy, and anticonvulsant medications like Convulex.

A MyFibroTeam Member

Medical marijuana and its derivatives show promise for treating seizures and chronic pain, with varying levels of evidence and regulation for each condition

I thought I'd mention this as they did a survey on helping children with seizures. This was found to help. It also helps chronic pain.. if you pop in Google medical M... for seizures and chronic pain. There is quite an interesting piece written.
It's helped so many children that were having over a hundred seizures a day. The parents were astonished as well as relieved. Is there someone you can speak to about this?
It is legal in many places now for medical purposes. It's done in the same way as other medication. I thought it's worth looking into if ut helps. 😘❤️✨️🙏

March 11
A MyFibroTeam Member

Could you see a rheumatologist when you can afford it. Over the years, I’ve seen several people here write about having those same seisures.

March 14
A MyFibroTeam Member

@A MyFibroTeam Member my daughter has had the same migraine issues you have. I didn’t realize there was a name for it? The first time it happened it was so scary. She was only about 26 I think, but was exhibiting all the signs of a stroke. Her entire right side was numb. She had migraines for years, but this was the first time experiencing this. They checked her over well and said it was a migraine. Migraines can be very strange things.

March 13
A MyFibroTeam Member

@A MyFibroTeam Member

Yes I've tried acupuncture but didn't find it helpful 😕 I saw a neurologist and had an EEG which did show some slowing of brainwaves (unexplained) but didn't show any epileptic activity. My Dr won't change or add to my medications.

March 11
A MyFibroTeam Member

Has anyone mentioned acupuncture? I don't want to mention medication yet a muscle relaxant of some nature could help. And have you seen a neurologist?
I'm sorry you are going through this ❤️💗🫂 love Peps

March 11

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