Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
Warwickshire England
March 1
 · 
Reactions
MyFibroTeam

Do family and friends struggle to understand when you're tired and in pain?

Yes, feeling misunderstood by family and friends is one of the most common experiences shared by people with fibromyalgia. You're definitely not alone in this.

Many people haven't experienced chronic pain or fatigue, so they simply can't relate to Show Full Answer

Do family and friends struggle to understand when you're tired and in pain?

Yes, feeling misunderstood by family and friends is one of the most common experiences shared by people with fibromyalgia. You're definitely not alone in this.

Many people haven't experienced chronic pain or fatigue, so they simply can't relate to what you're going through daily. Even when loved ones try their hardest to understand, they may never fully grasp it because they haven't lived it themselves.

Why this happens:

- Fibromyalgia is an "invisible illness" - people can't see your pain
- Others may mistake your exhaustion for laziness
- You might not always have the words or energy to explain why you can't get out of bed
- The chronic nature of symptoms is hard for healthy people to comprehend

What members experience:

A MyFibroTeam member shared: "No matter how many analogies I use to describe this condition, the eyeballs still roll, the blank stares still stare."

Another member described the emotional toll: "I get so frustrated when I have to try to explain why I can't do it. Why I can't go, why I'm letting everyone down, even when I'm trying the best I can."

The isolation can deepen over time as new symptoms and experiences push you further from what others can relate to. Close family can sometimes be the toughest critics, not understanding the difference between chronic illness and temporary tiredness.

March 1
A MyFibroTeam Member

I mask it quite well but my daughter and husband are spoting the signs now. It was hard when they didn't have a clue and still expected a lot from me. But now they have got clued up to my signs I give so they make me rest now. They actually gang up on me and shout for me to rest lol. Xx

March 2
A MyFibroTeam Member

Yes, it's hard for some to accept but it comes with time, some will never understand 💜

March 2
A MyFibroTeam Member

#GentleHugs Try visible. It's helped to have a visible and auditory away for them to hear and see when your doing to much. I've love it and the graphs. People like what they can see, so show them with data.

March 1
A MyFibroTeam Member

I’m glad you have support 💜❤️💕

March 1

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Devon U.K