When you try to explain the symptoms you often get labelled negative as sheer willpower, faith and manifestation ect. should be enough to have a steady performance=good days in general?
How open are you to meeting people and talk about fibromyalgia? I specifically mean people that you most probably cooperate, collaborate or work together in the future.
Answer Summary
Members shared their cautious experiences navigating disclosure of fibromyalgia to new people, with many reporting that they wait to build... Read more
I take a different approach with doctors. I will tell them and, if I see evidence that I am not being taken seriously, I find another doctor.
I don’t like to make assumptions that people will handle it poorly.
However, I also do not share my health or other personal details until trust is built- work relationships or otherwise.
That being said I also have family members and longtime friends that I don’t discuss certain things with. It’s not personal, sometimes it is just recognizing and accepting limitations. 🤷♀️💛
Sometimes it’s circumstantial. Do you find yourself in a position where you feel you need to explain?
I don’t talk about it until I get to know them a bit and they get to know me a little
I've found that most times people seem deeply uncomfortable with the idea of any kind of chronic illness/disability.
Oh good! I wouldn’t want to come off poorly and sometimes worry that I do. 💛😅
I guess in other words my experiences have lead me to be more selective or wait til some rapport is built. Not just with health topics either.
I’ve had both bad and good experiences disclosing this information. But ultimately decided to let someone get to know me first and vice versa before I make that decision.
I have no control over someone’s judgments of me, but I do over what I share. Talking about fibromyalgia and health conditions, especially in the workplace, makes me feel vulnerable. And while I think it’s brave to be vulnerable, for me, it feels wise to have trust in place first.