Everybody's answers explain how I feel about fibromyalgia. Mood swings, stinging debilitating pain, out of nowhere fatigue, speech inconsistencies, having to stay on schedule to keep flare-ups down, and constantly reminding people how fibromyalgia affects me from moment to moment. This group keeps me encouraged and knowing I'm not crazy and I'm not alone.

What has surprised me most is the unbelievable fatigue that goes with Fibro. Having RA, I already deal with joint pain, but the fatigue is almost too much to bear.

I have lost hope in all Fibromyalgia meds. I was on Lyrica for 4yrs. At 2yrs I started waking up with back pain. By 4yrs, it felt like someone was beating me with a baseball bat. I read the huge flyer that comes with the med- and found out, in some people, it can cause bone pain. It took me MONTHS to get off it.
I tried Cymbalta. In the first 4 mos. I thought I found a MIRACLE med. For 3 weeks I felt 10yrs younger. I was happy & had great energy! And then it stopped. Just stopped working at all. My doctor doubled my does to 120mg. I WOULD NOT (personally) RECCOMMEND THIS MED to ANYBODY. I spent half a year, slowly & safely getting off of it. It messed up my BRAIN- and even a year+ a half after being OFF of it, I still don't think my own hormones have corrected themselves. I call it the Poison Pill, that's how much it scared & affected me.
So I am back on oxycodone. It's not meant for fibromyalgia, but it helps me. And my brain, my INTUITION are returning to my NORMAL self.
I am tired of being a test subject for 'the newest med'...I have lost respect for medical "professionals". So I live with the ups & downs, missing out on my life and friends who can't understand why I am always sick. 😔 FIBROMYALGIA IS A LONELY, MISUNDERSTOOD ILLNESS.

Complete exhaustion that no one else understands

The over all exhaustion. No energy