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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question đź’­
Great Brittain

Is it common with Fibro to have smells that only you can smell? I can currently smell rotting eggs but as no ody else in the house can smell it and it's following me around I'm assuming either I smell like rotting eggs or it's a phantom smell. I can quite often smell cigarette smoke too.

June 17, 2023
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Answer Summary

Members connected over the shared experience of phantom smells with fibromyalgia, with cigarette smoke being the most commonly reported scent,... Read more

Members connected over the shared experience of phantom smells with fibromyalgia, with cigarette smoke being the most commonly reported scent, followed by rotting eggs, exhaust fumes, and even comforting scents like a late parent's pipe tobacco. Several members described having an unusually keen sense of smell that allows them to detect real odors others miss, while others experience true phantom smells that have no source, a phenomenon some identified as phantosmia that appears increasingly common among people with fibromyalgia. A recurring theme was the curiosity and reassurance members felt in discovering they weren't alone in this strange symptom, with some members finding patterns like smells preceding symptom flares or waking them at night.

A MyFibroTeam Member

I smell phantom smells and my nose is extremely sensitive to all smells. I often smell things that others do not. Most of the time I can find the smell but sometimes it's just a phantom 🤷🏽‍♀️

June 19, 2023
A MyFibroTeam Member

Forgot to add NO ONE else smells it at all.

January 20, 2025
A MyFibroTeam Member

No it is not common , but it is called Phantasm. I started getting these smells ( cigarettes) and when I researched it they are finding that more fibro patients are experiencing phantom smells. Some say they can go away, but more research is needed

November 11, 2023
A MyFibroTeam Member

The cigarette smell has been going on the last year for me. In the last 2 weeks the smell has been making it very hard to breathe, along with chills, and intense pain. My bf made me aware that when I begin smelling them my symptoms are about to get worse. It’s been every night and today during the day and I fell asleep.

November 10, 2023
A MyFibroTeam Member

yep.. after all the research I have done, sounds like it is related to Fibro

August 23, 2023

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