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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Fybro Pain Change Over Time?

A MyFibroTeam Member asked a question πŸ’­

Ive had fybro for 10 years and thought that i had experienced it all but finding during my latest flare up that im getting new symptoms. Anyone else experiencing new pains?

September 20, 2022
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A MyFibroTeam Member

Yes. I know I keep answering your questions but I feel like I have many of the same symptoms you have and also totally new ones in just the last year (had fibro for 13 years). I would also say I have more fibro days- meaning more days a year where I am symptomatic. However and conversely I feel I can control my flare ups better. I used to sort of ignore and charge ahead and then totally collapse and feel desolate and at times bedridden. I think some of the severity of my past flare-ups was worsened by anxiety and fear about what was happening to me. It took me a long time to accept the diagnosis of fibro (in fact I still wonder!) I was convinced I had something degenerative. I couldn't believe fibromylgia could cause such weird, diverse and intense symptoms without also causing obvious internal damage. I realize that it might cause damage and that there are always new things being proposed. I am always reading and trying to understand more. I am not as anxious or worried as I used to be and I sleep better. I still have sleepless scary nights but not too many. (Scary because it feels like I will spiral). I don't take any medication on a daily basis by the way. I want to wait as long as possible and maybe never because I don't want side effects and I feel ridiculously sensitive to medications so I am wary of them for me (not saying this is true for anyone else.) I think I also want to understand and try to see if I can control my symptoms through meditation, exercise, stretching, self massage, good diet and good sleep. I would say the answer so far (for me) is sort of! Ha ha. I hope your foot feels better! I hope you feel comfort somehow!

September 22, 2022
A MyFibroTeam Member

I've had fibromyalgia for nearly 25 years. The pain is bad but you learn to cope with it. Lots of painkillers and rest when you need to. Hope you have decent meds

September 20, 2022
A MyFibroTeam Member

Thats not good news. Oh dear.. and i thought things were going to get better over time. Not sure why i thought that. πŸ€”

September 20, 2022
A MyFibroTeam Member

Hi there. Yes you do get new pains in new areas and gets worse as you get older. πŸ’œ

September 20, 2022
A MyFibroTeam Member

Yes, it's as if the mind/body has a perverted/distorted amped-up memory for every boo-boo or injury you've had in your lifetime, then does a rewind and play!

September 20, 2022

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