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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Quality Of Life Question

Quality Of Life Question

My rheumatologist and neurologist have both suggested various medications (e.g. Effexor, Cymbalta, Lyrica, Neurontin) to possibly address my Fibro pain and fatigue. I’ve been reluctant to go down the pharmaceutical road. So far, I only take a beta blocker (Metoprolol) for hypertension and migraines with good success and no side effects. Otherwise, its a mix of vitamins and supplements as well as vestibular rehab and PT therapies.

From past posts on this forum as well as other online research… read more

A MyFibroTeam Member said:

Also Positive Fibromyalgia Group is great question answer group

posted 5 days ago
A MyFibroTeam Member said:

Checkout online...Stuff that Works.health. The fibromyalgia one. They have sites for all different kinds of illnesses. People write in their questions,and fibromyalgia sufferers respond with answers.

posted 5 days ago
A MyFibroTeam Member said:

When i went to a fibro specialist the first time i was in excruciating pain and not sleeping. Working 58 hrs week going in at 5 am. Thats when i got on this stuff and over years and me getting older theyve had to tweak and add here and there. If your pain is tolerable i wouldn't get started on all this stuff

posted 4 days ago
A MyFibroTeam Member said:

I ended up worse off on Gabapentin (Neurontin), I was put on it for nerve pain from a prolapsed disc and ended up with severe muscle pain amongst other disasterous side effects. I have recently tapered off it which has been long and very hard. I would do your research about any medication you may decide to try but bear in mind medications affect everyone differently. Good luck x

posted 5 days ago
A MyFibroTeam Member said:

Everyone is different. I can’t tolerate many medications. Have allergies today some and reverse reactions to some. I’m lucky when I can tolerate some. The problem with the three medications used for fibromyalgia is that they weren’t developed for fibromyalgia particularly. They were used for other illnesses, like seizures etc. So if you have the symptoms the drug was developed for it may work, like if you have seizures , depression etc. For a lot of us, we are in worse shape eighteen months after taking the fibromyalgia drugs. For some they stop working. For others it’s awful withdrawal to get off of them. Someone in severe pain has no choice but to go on the drugs and tolerate the side effects. It’s a hard call. Best to you🦋Victoria

posted 5 days ago
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