In your best opinion and assessment, how much do you believe that two senior chronically ill persons need to live a reasonable quality of life in the United States of America? This is a serious and complex question if you will. Thanks in advance.
Wow! Thank you for all that interesting history. I will look for the books too! What a great post , Pat.
Diagnosed almost a year ago; was recently taken off meloxycam I was taking in the mornings due to potential for liver toxicity and put on an increased evening dose of gabapentin instead. Was already on Effexor for depression so that's stayed. But ever since the med switch I've been barely making it home from work before collapsing with exhaustion. The problem is in those hours from 4-7pm the dog is desperate to be walked (he refuses any walker but me, go figure), dinner needs to be made, etc… read more
Sleep quality is just as important if not more important than quantity. Try different things for sleep. Ask your Dr if you could have sleep apnea. Prayers. I struggled with work for so many years but… read more
I’m wondering if it’s just me, but I’m definitely getting worse. Year on year the pain, fatigue and quality of life seems to be getting worse. I know the fatigue is also linked to Rheumatoid Arthritis and low thyroid. But just feel too exhausted to keep fighting it. Does anyone else feel like that or is it just me? Lizzy
Yes I Do! I too Get Tired Of Fighting The Pain And Depression. But I Have A Great Husband Of Almost 50 Years! God Bless
After years I asked my Doctor what she thought about medical Marijuana? Surprisingly she thought that it was a good idea. It’s the only thing that gives me a few hours of escape from my pain, depression and all of my Fibromyalgia companions that don’t allow me to live any resemblance to a life with quality.
I did that for about three years bit then I started to feel paranoid and had to stop.
Hi:
I take neurotin 400mg twice daily, vitamin D, omega 3, lidocaine patches, and use an alfa stem machine on my seriously rough days.
I'm 19 years old, from Ireland. I cannot work due to pain and fatigue and a million other symptoms! I have no quality of life, no income and feel so alone as I can't live the life of a normal -19 year old!
Does anybody know any jobs that would be suitable for fibro sufferers? I have been waiting 5 months to hear back to see if I can qualify for disability allowance and when I ring they just keep saying it'll be another few months before I hear anything ( that's government in Ireland for you!!)… read more
I think you should go in and see those people you are applying to get a disability. They are putting you off. Go in and explain you are really not good and you cannot work and want to know what is… read more
I would like to hear from anyone in the USA for this question...IF you are living alone on SSI & Medicaid only. What is it like for you, and how do you manage?
Looking forward to hearing reality. Some if us may be facing this.
Stacey
Thank you for your response. It isn't easy, but you are brave and strong. The Word says that when we are weak, He is strong. May He be strong in you and help us all
I have… read more
I told myself this year I am to take better care of myself!!! So far I've been very slow at it ( for obvious reasons) NO more excuses; I am my top priority!
So please tell me what it is that helps you feel better and relaxed or pampered??! Do you use expensive/quality shampoo conditioner??? Get you nails done??
Button line what's your "GO-To" for self care???? Beyond medication.
@A MyFibroTeam Member Have thought of you sweetheart
You are a true warrior honey and overcoming so very much. Self care is so good for you
Good to see you around once more. Take care my dear… read more
I couldn't see the benefit in teams but I did start one, then people asked to be on my team so I accepted them. The one benefit is if you want you can just read the messages from your team. You… read more