I am 32 years old and have fibromailga and a few other issues going on. I recently seen my rheumatologist and I've been telling him what's going on he looks at my med list and says I'm on to much which shocks me because he prescribed most of them. I know he sees way more patients then just me but I was shocked I literally feel like my body is fighting against me I'm slowly losing my muscle in my arms and legs it hurts to move I've been easily irritated and snappy which is not me. Anyways I would… read more
Hello @A MyFibroTeam Member,
Sorry you feel this way. It is very painful and distressing when health professionals don't understand and sympathise with chronic patients.
I take Amitriptilin 50mg and cocodemol at night. During the day Naproxen, paracetamol when I am in a lot of pain. Vitamins B complex, HTTP for sleep, vit D, Tumeric capsules and zinc daily. I find these helps manage my pain levels.
Amitriptilin at night helps relax my muscles and with sleep but don't take the pain off fully. Also, I've learnt stress causes flares up so I don't put myself in situations that causes stress.... my family and friends have realised my health and self care is priority.
Also implement gentle exercises, stretches and don't have alcohol.
Sending you gentle hugs, comfort and healing mercies 🌼🥰
@A MyFibroTeam Member So very sorry you have this Fibro dear.
It is so very disappointing when our doctors are very unsupportive. Very gentle stretches help. Very very gentle.
I know it hurts to move so think slow slow slow.
Even some very gentle chair yoga. Many online sites have it. Devin I recall my early days. We have to be our own advocates and do our own research.
It takes a lot of trial and error unfortunately.
We here hear you sweetheart.
Rest when needed do not push yourself too far.
Self care. Hugs and love
I'm 24 now, I've always had someone who can speak up for me at my appointments. I've heard that there are even people that you can ask for at the doctors
I felt this ..... I hear you girl!!
Everything that @A MyFibroTeam Member said! Stay active... I don't mean do marathons but try gentle stretches or short walks. Also try keep ur mind active as brain fog is brutal at times. Good luck lovely as I am in the same boat as you with drs.. They don't hear or see me and I'm 42. Keep fighting, keep changing drs, keep trying to be heard 💜
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