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Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone With Twitching?

Anyone With Twitching?

Anyone experience muscle twitching? If so do you know any treatment to reduce or stop them ?

almost 2 years ago
A MyFibroTeam Member

For "burning tingling electric shocks" sensations low dose clonazepam, 0.25 mg works for me. Seems to interrupt the "storm". Luckily I do not have to take the medication often.

almost 2 years ago
A MyFibroTeam Member

Same here. Been to nuero for tests twice. All normal. The pain is one thing but the burning tingling electric shocks are the worst. Like torture. Makes sleep impossible. My high dose vitamin d3 protocol has helped the pain but not the burning. I’ve found a little help with PEA supplement and alpha lipoic acid and L carnitine. Double the dose first month and have to take twice a day.

almost 2 years ago
A MyFibroTeam Member

Ive been getting a lot of the electrical buzzing sensations recently. I had nerve tests two weeks and all came back fine (i had them years ago and again they came fine).
I've done a lot of reading on this and it is definitely a symptom of fibro. Not everyone gets it but a big proportion do.
You are right, it can seem mental torture. But overtime you do get used to it. Ive had the twitching since 2006. It just started out of the blue one day. Over the years i noticed it got worse with stress. My fibro only started last year after a very emotionally traumatic time. The twitching has definitely ramped up since this started.
It's not easy but try and not worry about it. You almost have to accept that these symptoms are part of fibro.
If it was something more serious it would have progressed long before now. Plus there would be much more obvious other problems you would be experiencing.
A doctor recommended i look at this website www.neurosymptoms.org
It's not necessarily about fibro although it does mention it. But it's about how many people (more than who get Parkinsons or MS - so fairly common) have a nervous system which gives these strange symptoms, it's called a functional neurological disorder. But when tests are done (MRI, nerve conduction, etc) they come back fine.
I think people are genetically predisposed to fibro/ functional neurological disorders. When combined with stress or trauma it can manifest itself in some of the symptoms we experience.

almost 2 years ago
A MyFibroTeam Member

Have you tried magnesium and potassium and vitamin d3 also electrolyte water? If desperate the rx Cyclobenzaprine helps🤗

almost 2 years ago (edited)
A MyFibroTeam Member

Muscle relaxants can help
Speak with your doctor about a prescription

almost 2 years ago

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