God, I hate hearing that y'all have lived like this too!! I have learned to live with it, but that's because it started improving some after I was forced into early retirement due to disability in 2015. Also I changed my diet recently to keto which works well as long as I stay on magnesium. 😜 Plus, back in 2016 I went to PT because I had allowed my depression (from being forced out of my job) to turn me into a couch potato and I basically froze up completely. Couldn't hardly walk anymore or stand or more than 5 minutes. I wanted a dog too, but I couldn't walk it so I went to PT. The young man recognized my abdominal scarring and pain as something requiring a specialist. They sent me to a special division that worked only on pelvic pain!! I never knew such a place existed. It was rather embarrassing at first, but they had me walking without a cane in 5 months. They said my pelvic adhesions and my SI joint scarring had basically joined together. I was wrapped in adhesions all around my pelvic, hips, back and tummy. I still do the exercises they gave me every day. I would go in totally relying on my cane, and come out twirling it like Charlie Chaplin! After insurance refused to pay anymore, I did have to use my cane again, but recently got an epidural injection which has temporarily eased my SI joint pain enough to not use the cane for now. The excruciating stomach cramps have eased. You still can't touch my stomach, but I'm 1,000% better. August, I don't know if they can help men this way or not, because some of the work is done vaginally to relax the internal scars from the hysterectomy. But if I were you, I would look into it anyway!! I went to Results Physiotherapy and if they can help women with our scarring, maybe they can help men too!

I also have CPPS. It is very painful. I feel for you.

PS I truly hope you find relief! I hate the idea of someone else living with this level of pain. You're right. It makes Fibromyalgia look like a cake walk in comparison. And to answer your question, no, it's not normal to have abdominal pain like this! Unfortunately, it may be your "new norm" just as it became for me. I pray you find a doctor who's willing to help you.

@A MyFibroTeam Member, They left one of my ovaries in too because they knew how much I wanted kids. They said when they cleared off some adhesions, then went over to work in another area, they noticed that there was some blood flow to the right ovary and it came to life, so they left it in. For three months I tried to endure the pain, but couldn't even stand straight and could barely walk or drive a car. I finally had it removed as soon as the open holes were healed and my drain had fallen out. God, I hated having a drain sticking out of me for so many months. I was dating a new guy too! I'm surprised he hung around through all that!

Thanks to both of you for responding. I just turned 38 and have been living with fibro and CFS since my late teens, but only got diagnostic in my mid/late 20’s! I’ve always had aches and pains in what I like to call the nether regions lol but it would always either be a limited cramp that’ll last a short while or a sudden stab. Always have had pain from head to toe randomly hence the fibro! But about 2 years ago when urological symptoms started (weak stream leaking) they told me my prostate was quite large after a cystoscopy last Xmas and after the immense burning and pain started in the pelvic/groin area, they have mentioned this CPPS/Chronic non-bacterial Prostatitis and have referred me for pain management and shoved me on buprenorphine patches on top of my existing tramadol. I’d say it helps a little, but not enough because I’m still in agony. I don’t know if it’s also mental acceptance aswell. Basically I always head to the most sinister of thoughts from the pain and never trust the doctors which has been an issue all my life. Accepting that the added stress on that makes the pain 100% worse isn’t something I tend to accept, hence the conflict I have within myself. The burning in addition to the stabbing (new for me) is just horrible. Thanks for clarifying it though. I’ve been trying to understand why this pain is affecting a greater area than just the pelvis, but now have been reading online that fibro on top of a pelvic syndrome can cause the sharp/burning from both sides of the body abdomen to feet. If this is my new normal, I’ve got to find some strength to overcome the pain, because my life has become my bed now with just trips to the loo! Sorry for the description. Thanks again for the feedback 🙏🏻