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A MyFibroTeam Member asked a question 💭

I have Severe Fibromyalgia..My question is in all seriousness, whom writes the article? Certainly not a person with fibromyalgia..I've never ever had ANYTHING over the counter work it's like our tolerance doubles so does our resistance..mine is 1 of the most chronic severe cases...I NEVER TOOK MEDS PRIOR FOR PAIN/MUSCLE.. it required out the gate an opiod long and short term...we are being penalized for an epidemic when we truly need it to be functional have physical use of our limbs and… read more

posted January 18, 2020
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A MyFibroTeam Member

Anyone interested I googled Harvard ,Fibromyalgia. Found good information moving forward to bring with me to Dr. Visits where the doctor isn't familiar with fibromyalgia...from everything to nerve endings to, appropriate pain relief and what it can require...terrible week here, I hope everyone else is well;-)

posted January 25, 2020
A MyFibroTeam Member

i know everyone is completely different but the buffered 800 mg has been good for me,, i used to down 600(3 advil) at a time every 4 hours but the 800 seems to work pretty good,, not perfect and sometime i have to throw the norco on top ,, but at least for me if i dont stress my body to much it works pretty well and since its prescription its buffered so its a slow release and doesnt seem to hurt my stomach ,, probably just destroying my kidneys :(

posted January 20, 2020
A MyFibroTeam Member

Where is the article?

posted January 19, 2020
A MyFibroTeam Member

@A MyFibroTeam Member Hi Lisa....read your post. I agree with you about most doctors and it is so frustrating. I've had fibro since 1986 and for me it has taken so much from me like so many of us on this site. About 6 months ago I asked the doctor this question.....What is going on in our bodies that we have debilitating pain for months at a time.....and then for a few days we feel better....What is happening in our body that we can suffer like we do and then all of a sudden we have some better days and then back to misery? Why can't the medical community find what is happening in our bodies to have better days and have treatment for us to sustain it......At least he was honest and said...We really don't know.....

Take care Lisa....finding this site has helped me cope better due to the people here know what we are dealing with. Hugs, Linda

posted January 18, 2020
A MyFibroTeam Member

My tenderpoints welt and swell off my body literally..when on meds that doesn't happen like that but you can still push on them and feel they are inflamed..I wish anything but my regimen would work but it dont..was okay until the epidemic..I honestly dont believe Fybromyalgi ppl get the high from meds like other ppl..I do apologize I did assume when other ppl get what is called a flare that they too could push and feel the tenderpoint inside swollen they used to make you do a " tinderpoint test upon diagnosis..I know others have it in my family not as severe nothing works for them either and points on them due swell..many many advertisements including ppl from the NFA will say it's invisible yes nothing comes back on test, except the tinderpoint test..that really had nothing to do with the advil article, I am just very un edge and sensitive to the severity of pain down played with Fybromyalgi during this horrific crisis of neglect to ppl whom never even had any issues with addiction " it's as if doctors forget difference between dependency and addiction anymore". I to suffered many ailments as a kid migraines, neck spasm,back pain ," I believe it was always fibromyalgia looking back just not in its entirety...I'd really just like a person whom gets in front of doctors to say hey, this is neglect,this is real,is severe and can be made functional with adequate dosages of proper pain reliever and other meds...Dr.s most of them believe and try to treat it with only nerve endings or anti depressants anything other than what does actually give us a little relief..I was a bit harsh so I do apologize for that..

posted January 18, 2020

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