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Is This Really Fibromyalgia?
A MyFibroTeam Member asked a question 💭

I was diagnosed with fibromyalgia about a month ago. I am a 25 y/o male. My first symptoms started with intense headaches and stiff neck. I couldn’t move my head at all without pain. Then the pain subsided a little, then went down my back. Could barely move at this point I had to go to the er because the pain was so bad. Of course nothing was wrong with me. Or that’s what they said. The pain after two days just vanished like it was never there. A week went on and the pain came back with a lot… read more

posted January 2, 2020
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A MyFibroTeam Member

@A MyFibroTeam Member I’m on a muscle relaxer to help with sleep and stiff muscles. But I’m not sure of the name. I’m on doxipin I think that what it’s called for anxiety and headaches. To rule out other health conditions I did about 20 different blood tests, one urine test, a mri of whole body, ct scan of lower back(form the er visit). Btw I don’t take the meds anymore because for one I don’t like taking medicine and two they make me constipated. The only thing they found was low vitamin d at 23 nano grams I think that’s what the doctor said. So I do take my daily vitamins now.

posted January 3, 2020
A MyFibroTeam Member

Stacee it sounds like Fibro. There are many many symptoms with Fibro, and we all suffer from different ones, but, there are many commonalities. So, we all have some of the same ones along with varied. It’s very complex unfortunately. To me, what you described, sounds like Fibro. You said you were diagnosed a month ago. Have you been to a Rheumotologist? I’m so sorry you’re so young with this. Please do a lot of research and keep inquiring here. Become your own advocate. Drs still don’t know a lot about a fibro, so we have to really get to know our own bodies and be our own advocate. You’re not alone in this, we’re here for you. Please know that, Deb

posted January 2, 2020
A MyFibroTeam Member

Stacee94, I think your symptoms could be caused by fibromyalgia, but also could possibly related to anxiety. Anxiety can produce symptoms very much overlapping with fibro. How long have you had your symptoms? The wide spread pain? Fibromyalgia often attacks very motivated, driven, physically very active, go getters, people who had severe psychological, emotional, or physical trauma, or after accident, surgery, after illness.
It must be scary and frustrating for you to go through this experience but things will sort out with time as you manage to learn to deal with your symptoms.

posted January 4, 2020
A MyFibroTeam Member

My fibro was picked up because they were actually testing me for lupus as some similar symptoms, dont be fobbed off, a rhumatologist should be able to tell you then take it from there

posted January 4, 2020
A MyFibroTeam Member

We all have different experiences and symptoms! It can be discouraging never knowing for sure. I've had so many tests done that all come back clear and yet when I flare I always feel like it can't just be one thing causing it! A lot of people go through periods where their symptoms are almost non-existent. A norm for you won't be the same as someone else! You can still have fibro without being in constant severe pain. Everybody has good and bad days. Some days are just more manageable. I agree with Lildeb. Do research! Ask questions! Whatever can help you understand. A rheumatologist is a good idea if you haven't seen one. A lot of them will order their own extensive testing and have a lot more knowledge on this condition than a family Dr would. I hope you find the answers you're looking for! This site is a great place to be. You'll always have a support system!

posted January 2, 2020

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