Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyFibroTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyFibroTeam Member asked a question 💭
San Diego, CA

Hello all
I am a 34-year-old male and am new to this site. I was hoping to get some feedback from other users. I am currently in the midst of acquiring a diagnosis. I have been going to doctors for the last 4 years trying to get an answer. My chief complaints are severe thoracic back pain and neck pain.
I also experience the following in order of predominance:

- neck tension/irritation starting between the top of my shoulders (around c7)
- headaches that radiate from the back of my head… read more

November 6, 2019
 · 
Reactions

Answer Summary

Members strongly validated the original poster's symptoms as consistent with fibromyalgia, with many sharing eerily similar experiences of... Read more

Members strongly validated the original poster's symptoms as consistent with fibromyalgia, with many sharing eerily similar experiences of thoracic and shoulder blade pain, burning extremities, fatigue, and years of inconclusive testing before receiving a diagnosis. Several members emphasized that fibromyalgia is typically diagnosed through the process of ruling out other conditions, and they encouraged finding a skilled rheumatologist who specializes in fibromyalgia diagnosis, while also expressing frustration that one doctor incorrectly dismissed the possibility based on gender. A recurring theme was the emotional toll of living with an illness that offers no definitive test or cure, often met with skepticism from medical providers and society, yet members offered solidarity and gentle encouragement to keep advocating for proper care.

A MyFibroTeam Member

@A MyFibroTeam Member I remember saying that to my Rheumatologist.
The pain does move about and I tell myself it may be arthritis and not Fibromyalgia.
I don't like the diagnosis, no one has any patience with it AND it doesn't kill you

A woman in hospital transport who told me I wasn't eligible said " lots of people here have fibromyalgia and THEY WORK!!!"
I have macro degeneration and needed collecting and taking home because I was having an injection in my eye and can't drive either.
I have a blue badge and she told me to use that!!
Unfortunately, my chauffeur, my husband, died 5 weeks ago so I no longer have that option
I suppose she found that annoying as well
I am so glad I am able to fight my own corner but I do wonder how other people who can't stand up to bullies deal with people like her😒

November 7, 2019
A MyFibroTeam Member

Sounds like fibro to me. I deal w alot of that same stuff and so do others on this site

November 6, 2019
A MyFibroTeam Member

I can honestly say your list of symptoms is eerily similar to mine. I could almost copy and paste your list for myself. My diagnosis came when the dr had tested me for everything she could think of and nothing was found to explain the symptoms. Its a diagnosis that comes when other diseases/conditions that can cause the same symptoms are ruled out. I relate so much to you as well on the thoracic pain and rib pain. Always one of the worst symptoms for me.

November 6, 2019
A MyFibroTeam Member

Pain between or on shoulder blade areais very common. Google “ pininterest fibromyalgia”...lots of info

November 6, 2019
A MyFibroTeam Member

I am sorry, that doctor was stupid as any I ever heard of. I know a man who has this condition and there are some on here as well. It is not a sexist illness LOL. The pain between my shoulder blades is always my worst. I get trigger point injections with lidcaine and it helps. I can't get them as frequently as I used to due to money. but that is my worst spot usually and my shoulders and neck. The rest of me hurts and I have a lot of bad ouchie spots, but that is where mine started and still is the most dominant of all of my pains.

November 6, 2019

Related Questions

View All
A MyFibroTeam Member asked a question 💭
Mobile, AL

A MyFibroTeam Member asked a question 💭
Middleburg, FL

A MyFibroTeam Member asked a question 💭

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In