Physio and massage made my pain worse. I use a lot of wheat/heat pads. Big hugs xx

I’m sorry you’ve been diagnosed with this awful syndrome VictoriaC. I found massage at times increased my pain and acupuncture and physiotherapist did nothing for me but it works for others. Drug free treatments that have worked are float/hydrotherapy and chiropractic (if you can find a good Chiropractor) to reduce the pain somewhat. I use medical cannabis for pain and sleep. It does help enough for me to function. I very rarely will take NSAIDs or Tylenol 3 with codeine, usually when I’m travelling because I can’t travel with the Cannabis. Many people have success with CBD preparations, oils, capsules or tinctures. I wish you all the best 🤗💕

Nothing works for me, the side effects are brutal and the benefits are not noticable in my case. Tried muscle relaxers, gabapentin, SSRIs, amitiptyline, ibuprofen (gives me terrible stomach pain and also does not work for fibro pain). To get pain relief I try to avoid activities which can cause flare up of my symptoms, take warm bath for muscle aches, warm compress, gentle exercise (takes time to figure out what works what makes pain worse). I use kinesiology tape to stabilaze muscle group areas where I have the most pain (rib cage area from front to back). The only medication I take sometimes when muscle twitches and electrical shock sensations are very painful and frequent is Clonazepam 0.25 or 0.5 mg. I try to stay away from meds as they do not work unfortunately but make me feel tired, anxious and just simply worse. Others on this forum find some meds beneficial so it is possible to find relief, this is just my case.

I have found that what best works for me is a combination of meds and stretching exercises along with healthy eating. I have given up sugar and feel much better. My pain level is low most of the time. Sleep is important, everyone has to determine how much they need. For me it is 7-8 hrs nightly. Also, sometimes I nap on the weekends. It helps a lot. Good luck. It isn't easy finding what works for each of us. We are all different.

I agree, physio definitely made my pain worse! Think about it, in each stretching exercise they have you do, you are stimulating the nerves! Once they start, look out, it just doesn’t turn itself off again that easy when you stop!!